Page | 1 MississippiÕs Project Access: A Collaborative Community Response Needs Assessment Report Submitted to Amy Loder Program Specialist U.S. Department of Justice Office on Violence Against Women Project Access Team Partners: Mississippi Department of Public Safety, Division of Public Safety Planning University of Mississippi Medical Center School of Nursing Mississippi Coalition Against Domestic Violence Mississippi Coalition Against Sexual Assault The Arc of Mississippi The University of Southern Mississippi Institute for Disability Studies Submission Date: February 19, 2010 Approval Date: March 1, 2010 Page | 2 Acknowledgements The Project Access Team thanks the following organizations, organization staff and selfadvocates for their unwavering commitment to this project and the implementation of the needs assessment: ¥ University of Mississippi Medical Center Emergency Medicine Department ¥ Catholic Charities Rape Crisis Center ¥ Catholic Charities Family Shelter ¥ The Center for Violence Prevention ¥ Mississippi National Alliance on Mental Illness ¥ Living Independence for Everyone of Mississippi ¥ The Arc of Mississippi ¥ My Voice, My Choice ¥ Disability Rights Mississippi ¥ Warren County Mental Health Service ¥ West Central United Way ¥ River Region Medical Center Emergency Department ¥ Haven House Dedication This needs assessment report is dedicated to the individuals with disabilities and organization staff who shared their stories, observations, best practices and wisdom with the Project Access Team. The Project Access Team appreciates their enthusiasm and insight into achieving meaningful change in services and supports that individuals with disabilities receive as a result of their experiences with domestic violence or sexual assault. Page | 3 Table of Contents Acknowledgements 2 Dedication 2 Section 1: Overview of Project Access 5 Introduction 5 Section 2: Overview of Mississippi and Target Communities 7 Mississippi 7 Needs Assessment Pilot Sites 8 Section 3: Overview of the Needs Assessment 11 Goals 11 Narrowing the Focus of the Needs Assessment 12 Selection of Pilot Communities 12 Selection of Participating Organizations within Pilot Communities 12 Selection of Individuals within Organizations to Participate in the Needs Assessment 14 Assessment of Pilot Sites 14 Needs Assessment Implementation 14 Target Audiences for Focus Groups and Interviews 15 Needs Assessment Plan Implementation: Overview of Contacts 15 Stakeholder Interview and Focus Group Protocols 18 Data Analysis 20 Needs Assessment Strengths and Challenges 20 Key Learning Areas and Findings 22 Section 4: Key Findings and Their Implications 23 Needs Assessment Findings 23 Strengths of Crisis Response and Ongoing Service Delivery 23 Page | 4 Gaps of Crisis Response and Ongoing Service Delivery 24 Similarities and Differences in Accessibility and Delivery of Services 30 Potential Partnerships and Collaborations among Organizations 31 Implications of Key Findings 33 Summary of Key Findings 35 Selection of Organizations from Pilot Communities 36 Selection of Organization Pilot Sites for Project Focus 36 Background Information on Selected Organizations 39 Strategic Planning 43 Appendix A: Interview Themes 44 Page | 5 Section 1 Overview of Project Access Introduction The 2006 Office on Violence Against Women (OVW) grant for Education and Technical Assistance to End Violence Against Women with Disabilities provided the opportunity for public service organizations and advocacy organizations in Mississippi to establish a formal collaborative relationship with an emphasis on changing systems. The six partner organizations that comprise the Project Access Team (PAT) in the Mississippi collaboration are: ¥ The Department of Public Safety - Division of Public Safety Planning (DPSP)ÑGrant Administrator ¥ University of Mississippi Medical Center School of Nursing (UMMC)ÑLead Organization ¥ Mississippi Coalition Against Domestic Violence (MCADV) ¥ Mississippi Coalition Against Sexual Assault (MCASA) ¥ University of Southern Mississippi Institute for Disability Studies (IDS) ¥ The Arc of Mississippi (The Arc) This alliance of six organizations is built on a nearly 20-year history of previous projects and initiatives, and most importantly, a shared commitment to serving womenÑall womenÑwho have experienced domestic violence and sexual assault. For the past three years, the collaborating partners have strengthened their relationship through the development of a collaboration charter and a plan to enact systems change in selected communities in Mississippi. This planning process involved four phases: 1. strengthening the collaboration among partners through the development of a collaboration charter reflecting the partnersÕ vision, mission, values, and roles and contributions of each partner; 2. developing a targeted needs assessment to determine interest in and the ability to make system changes to provide services and support to individuals with disabilities who experience domestic violence or sexual assault; 3. analyzing data from the needs assessment to further narrow the focus of the project as well as the geographic location of implementation; and 4. organizing the needs assessment findings to guide the development of a strategic plan mapping out the strategies and activities the collaborative will implement to assist the targeted communities in developing collaborative response systems that provide women with disabilities access to the same standard of care available to other women who experience violence. Page | 6 This report details phases 3 through 4 of the planning process: implementation and analysis of the needs assessment. The needs assessment plan was carried out in June through October 2009. PAT partners conducted 16 focus groups and 56 interviews. A total of 139 individuals participated in the needs assessment process. Gathered data represented a wide range of opinions. Points of view of staff of domestic violence and sexual assault programs, health care organizations and disability service organizations were obtained from each of the two selected communities. The insights and wisdom of people with disabilities from each community were also obtained through focus groups and individual interviews. Strategic Planning The PAT will engage in a strategic planning process once the Office on Violence Against Women has accepted the needs assessment findings. The strategic planning process will include discussions among PAT partners as well as invited guests who have expertise in needed areas. Among the invited guests will be domestic violence, sexual assault, and disability advocates. We will also invite people with disabilities and health care providers. Through discussions with the invited guests and with support from our technical assistance provider, the Vera Institute of Justice, the PAT will develop a strategic plan that addresses key findings of the needs assessment while using the identified strengths of the target communities. The PAT will create opportunities for collaboration among advocates and organizations and will develop strategies for the sustainability of the project after the conclusion of the grant. Page | 7 Section 2 Overview of Mississippi and Target Communities Mississippi More rural than urban, Mississippi has a total population of 2,938,618 according to the 2008 Census estimate. A quarter of the stateÕs current populationÑ26.1%Ñis under the age of 18, and 12.6% is over age 65. MississippiÕs population is 51.5% female. Statewide, 60.6% of the total population is white and 37.2% is African-American; 2.2% is Hispanic. In 2007, one in five MississippiansÑ20.7%Ñlived below the poverty level. The stateÕs median household income for this same period was $36,424. The stateÕs average unemployment rate in 2007 was 6.3% according to Bureau of Labor Statistics data featured in the Kids Count Mississippi 2008 Data Book. Mississippi has one of the highest state percentages of population with any disability, 23.6% of the state total population over the age of five according to the 2000 Census; 14.4% of the population age 16 to 64 have an employment disability. In Mississippi, one in three families with children under the age of 18 is a female householder with no husband present. Professional Education Informational trainings on domestic violence, sexual assault and disabilities for health care, case management, and law enforcement professionals have finally become more readily available in Mississippi in recent years. Sexual Assault Nurse Examiner (SANE) trainings were begun in Mississippi in 1999. Over 1,000 people have been trained during the 10 years of the programÕs existence. This 40-hour course is open to registered nurses, nurse practitioners, certified nursemidwives and physicians and is usually taught three times a year. There continues to be a need for trained health professionals statewide. Law enforcement professionals in some cities and counties received training through two previous programs administered by the University of Southern Mississippi Institute for Disability Studies. And Justice for All and Project Haven both provided training and consultation and disseminated resource information to law enforcement officers, prosecutors and judges on abuse, neglect and violence affecting people with disabilities, especially in the area of domestic violence and sexual assault. Trainings included information on recognizing, addressing, investigating and prosecuting domestic violence, sexual assault, abuse and neglect of adults with various physical and developmental disabilities and the elderly. Transportation Page | 8 Because Mississippi is a rural state, public transportation has long been an issue in the state. There are no state funds allocated for public transit in Mississippi. Any successful organized transportation systems in use in the state have been developed and maintained by local communities or organizations funded by federal dollars for transportation of the elderly or people with disabilities (5310) or people living in rural areas (5311). There is limited non-emergency transportation for Medicaid beneficiaries who need transportation to medical appointments through the Division of Medicaid. Medicaid As with most states, Medicaid spending fluctuates with the economy. A conservative Medicaid state because of its long history of poverty, Mississippi, like other states, has worked to control the growth of its Medicaid program. While Mississippi has one of the highest federal matching percentages, the state legislature still struggles every year to find monies to fund the stateÕs quarter share. State Medicaid officials say the funding of mandated programs take precedence over the more flexible waiver programs that other states use to fund more progressive home- and community-based programs that can better serve people with disabilities. Health Services Health services can be hard to come by in some of MississippiÕs communities. According to the Health Resources and Services Administration (HRSA), Mississippi ranks last among the states in physicians per capita, with a count of 141 physicians per 100,000 population, falling considerably below the national count of 198. The rate of physician assistants practicing per 100,000 in 2000 was more than 10% below the national rate. In 2008, the Mississippi State Department of Health reported on the stateÕs 108 hospitals. Seven of MississippiÕs 82 counties did not have hospitals, but 33 hospitals reported 75 rural health clinics. Two rural hospitals decreased their licensed bed capacity. Two hospitals closed. The PAT partners conducted needs assessment activities in two pilot communities: Needs Assessment Pilot Sites Jackson Jackson, Mississippi is located in Central Mississippi in Hinds County. It is the capitol of Mississippi and houses the only academic medical center in the state. Jackson has a population of 184,256 with 85,656 (46.5%) males and 98,600(53.5%) females. The median resident age is 31.0 years with the Mississippi median resident age being 33.8 years. The estimated Jackson median household income in 2005 was $31,177 while the Mississippi median household income was $32,938. Races in Jackson include 70.6% Black, 27.5% White Non-Hispanic, 0.8% Hispanic, and 0.7% two or more races. Page | 9 The University of Mississippi Medical Center (UMMC) is located in Jackson. It is the only academic medical center in Mississippi and has the only level 1 trauma center in the state. The Emergency Department has the oldest Sexual Assault Nurse Examiner program in the state. UMMC has the only medical, dental, and physical therapy schools in Mississippi and houses the state flagship School of Nursing. There are two family violence shelters in Jackson and one rape crisis center. The rape crisis center also provides services for the Vicksburg community. The Arc of Mississippi, Living Independence for Everyone (LIFE) and the National Alliance on Mental Illness (NAMI), all statewide disability advocacy organizations, are located in Jackson. My Voice My Choice, a statewide self-advocacy group, is also located in Jackson as is Disability Rights Mississippi and Hinds Behavioral Health. LIFE, NAMI, and My Voice My Choice have self-advocates from across the state who meet periodically in support groups. Vicksburg Vicksburg, Mississippi is located in West-Central Mississippi with a population of 26,407. It is approximately 45 miles from Jackson on Interstate 20 West. There are 11,969 (45.3%) males and 14,438 (54.7%) females in the city. The median resident age in Vicksburg is 34.3 years (Mississippi is 33.8 years). The estimated Vicksburg median household income in 2005 was $28,200 ($32,938 for Mississippi). VicksburgÕs population is 60.4% Black, 37.4% White Non- Hispanic, 1.0% Hispanic, and 0.6% two or more races. Vicksburg houses Haven House, which is the only family violence shelter in the city. The city does not have a rape crisis center. The Jackson-based Catholic Charities Rape Crisis Center provides services for the Vicksburg community. River Region Medical Center is the only hospital in this rural city. The medical center emergency department has one of the youngest Sexual Assault Nurse Examiner programs in the state. The Arc of Mississippi, Living Independence for Everyone (LIFE), the National Alliance on Mental Illness (NAMI), Disability Rights Mississippi and My Voice My Choice all have branches in Vicksburg. Vicksburg also has an outstanding regional mental health center, Warren County Mental Health Service, which collaborates with many of the disability-focused organizations. LIFE, NAMI, and My Voice My Choice have self-advocates who meet with the Jackson self-advocate support groups. All of the aforementioned organizations in both Jackson and Vicksburg participated in the needs assessment process and have indicated their desire to continue to participate in the grant project in a way that will improve their services for people with disabilities. A map of Mississippi with the location of Vicksburg and Jackson indicated can be found on page 10. Page | 10 http://www.smart-traveler.info/ms_.html Jackson, MS Vicksburg, MS Page | 11 Section 3 Overview of the Needs Assessment Process Purpose One purpose of this needs assessment was to learn from women with disabilities about their experiences in seeking services. The Mississippi Project Access (PAT) partners wanted to discover what made their access to services successful or what barriers impeded or prevented women from obtaining needed services. In addition, the project team wanted to learn from service providers within the indigenous programs (domestic violence, sexual assault, disabilities, and health care) about their experiences in rendering services to individuals with disabilities who experienced violence. Understanding both effective and ineffective service delivery is equally important to the (PAT) partners. Finally, the PAT partners wanted to identify opportunities to support partnerships that promote collaborative advocacy strategies that respect choices made by individuals with disabilities. Goals The overall goal of this project is to assist the selected communities in developing collaborative community responses for women with disabilities who experience domestic violence or sexual assault. The PAT partners developed the following goal statements to assess the availability and accessibility of existing service delivery systems in each pilot community. These goals guided the development of the specific questions formulated for use in focus groups and individual interviews. ¥ Identify the strengths and gaps in crisis response in an urban community. ¥ Identify the strengths and gaps in crisis response in a rural community. ¥ Identify the strengths and gaps in ongoing service delivery such as counseling, transportation and shelter in an urban community. ¥ Identify the strengths and gaps in ongoing service delivery such as counseling, transportation and shelter in a rural community. ¥ Identify similarities and differences in accessibility and delivery of services between urban and rural communities in Mississippi, including a review of the policies and practices already in place. ¥ Identify potential partnerships and collaborations among organizations to provide an appropriate collaborative community response and delivery of services. The information obtained through the needs assessment will assist all participants in making more informed decisions when strategically planning for a collaborative community response system that better serves women. Page | 12 Narrowing the Focus of the Needs Assessment Collaborating partners participated in a careful process by which the focus of the needs assessment was narrowed to one urban and one rural Mississippi community. The PAT partners further evaluated domestic violence, sexual assault, disability, and health care direct service organizations and advocacy organizations in each community against established criteria to determine their appropriateness for inclusion in the project. The narrowing process was continued by choosing to include individuals at all levels within the organizations to participate in interviews or focus groups: leadership, direct service providers and consumers (selfadvocates) of direct services. Selection of Pilot Communities The PAT partners developed a two-tier system for selecting the needs assessment pilot sites. The first tier narrowed possible communities to be included in the needs assessment. Next, organizations were selected within each community that represented the best fit for the project. Two geographic locations were selected: Jackson (urban) and Vicksburg (rural). These two cities are approximately 45 miles apart. The reasons for selecting these geographical locations included: ¥ These are two distinct communities in close geographical proximity. This made it manageable for the Mississippi partners and Jackson organization participants to travel to Vicksburg and vice versa. ¥ Since Vicksburg does not have a Rape Crisis Center, it uses the Jackson-based Rape Crisis Center for its crisis center referrals. ¥ Vicksburg has the newest Sexual Assault Response Team (SART) in the state and Jackson has the oldest. ¥ Both cities use the other as a referral site for individuals seeking shelter who need to leave their home area. ¥ The domestic violence shelter executive director in Vicksburg requested that Vicksburg be considered as the rural pilot community. ¥ Each community has local chapters of The Arc of Mississippi. Selection of Participating Organizations within Pilot Communities Upon selecting these geographic regions, the project team developed the following criteria for determining which organizations would be included in the community assessment process: ¥ Pilot organizations would demonstrate quality buy-in to the project through verbalization and through their active participation in initial meetings with the PAT partners. They would express a strong interest in improving domestic violence and sexual assault crisis services and ongoing services for individuals with disabilities. Leadership in the organization would be willing to be an active participant in the project. ¥ Pilot organizations would provide crisis-related services or ongoing services to individuals with disabilities who experience abuse. ¥ Pilot organizations would have the capacity to be a part of the Disability Abuse Response Page | 13 Team (DART) as well as to evaluate and change policies and procedures to improve access to services. The organization would be willing to change or modify how they serve people with disabilities. ¥ Pilot organizations would be willing to work with the PAT partners to receive technical assistance and to develop collaborative partnerships within the community. The PAT partners evaluated organizations in the Vicksburg and Jackson communities against the previous inclusion criteria. Initial meetings were held in the two pilot communities to explain the work of the project and to gauge the willingness of the individuals and commitment of the organizations to participate in the project. Every service entity invited to participate in these initial meetings indicated their support and desire to be an active participant in the needs assessment and the ongoing project. Based on the vision of the PAT partners, the following organizations were selected to participate in the needs assessment for the purpose of gathering information: Jackson Community ¥ Catholic Charities Inc., Rape Crisis Center ¥ University of Mississippi Medical Center, Emergency Department ¥ University of Mississippi Medical Center, Social Work Department ¥ Center for Violence Prevention (Family Violence Shelter) ¥ NAMI - Mississippi National Alliance on Mental Illness ¥ LIFE of Mississippi (Living Independence For Everyone) ¥ My Voice, My Choice Self Advocates ¥ The Arc of Mississippi ¥ Disability Rights Mississippi (formerly known as Mississippi Protection and Advocacy System, Inc.) ¥ Hinds Behavioral Health (Hinds County Mental Health Service) Vicksburg Community ¥ Warren County Mental Health Service ¥ Midd-West (The Arc of Warren County) ¥ Rape Crisis Center, Catholic Charities ¥ United Way/ West Central ¥ LIFE of Mississippi (Living Independence For Everyone) ¥ River Region Medical Center, Social Work Department ¥ Haven House (Family Violence Shelter) ¥ River Region Medical Center, Emergency Department ¥ NAMI- Mississippi National Alliance on Mental Illness ¥ Disability Rights Mississippi (formerly known as Mississippi Protection and Advocacy System, Inc.) Page | 14 Upon completion of the needs assessment implementation and analysis of data, these organizations received further evaluation for inclusion in the implementation of the strategic plan. See pages 39-43 for identification and description of selected organizations. This further narrowing of organizations will make the implementation of the strategic plan more manageable and will allow PAT partners to give concentrated time and effort towards achieving common goals with each organization. Selection of Individuals within Organizations to Participate in the Needs Assessment The PAT partners determined there were five groups with direct experience in providing or accessing services for women with disabilities who have experienced violence: a) communitybased health care providers, b) community-based disability advocates, c) community-based domestic violence advocates, d) community-based sexual assault advocates, and e) women with disabilities (self-advocates). The project team members believed: ¥ individuals within those five groups would be able to provide an accurate depiction of the strengths and gaps in crisis response and ongoing services provided to individuals with disabilities who experience abuse and who choose to access services; ¥ self-advocates could identify why an individual might choose not to access services; and, ¥ based on this information, PAT partners would be able to identify similarities and differences between issues in service provision in an urban and a rural community in Mississippi. Assessment of Pilot Communities Before the implementation of the needs assessment, the needs assessment plan was submitted to the University of Mississippi Medical Center Institutional Review Board for review and approval. Upon final dispensation of the Institutional Review Board, the needs assessment was conducted in the two selected communities from June through October 2009. Needs Assessment Implementation The implementation of the needs assessment allowed the PAT to achieve three global goals: 1. to gather information to determine the specific organizations within the selected communities to include in the project implementation phase; 2. to attain the projectÕs goals to identify strengths, challenges, and needs for organizations, staff and self-advocates within each community; and 3. to identify potential partnerships among community organizations. The assessment data also provided the PAT partners with information related to gaps and strengths in crisis response and ongoing service delivery such as counseling, transportation and shelter. The findings identified similarities and differences in accessibility and delivery of services between the selected urban and rural communities in Mississippi as well as potential Page | 15 partnerships within and among communities. The project team was also able to initiate or enhance relationships among the partners and the community key stakeholders. Methodology The needs assessment included the collection of both quantitative and qualitative data with the greatest emphasis on qualitative data. This data ranged from descriptive statistics from existing community data to thematic coding of new interview and focus group data. Target Audiences for Focus Groups and Interviews Interviews were conducted with individuals in leadership positions (or their representatives) and selected medical personnel by PAT partners. Leaders were chosen because of their firsthand knowledge and insight into the policies and procedures of their organizations. Individual interviews with these leaders provided the project team with a unique perspective on the organizationÕs systems and potential for change. The project team chose to interview leaders and selected medical personnel one-on-one because it was easier to access them individually rather than assemble them for a focus group interview. Several self-advocates were interviewed oneon- one as well because of availability issues. A smaller number of focus groups were conducted for organization staff and self-advocates. Needs Assessment Plan Implementation: Overview of Contacts In total, the PAT partners conducted 16 focus groups and 56 individual interviews. A total of 139 individuals participated in sharing their point of view with the PAT. Below is a breakdown of needs assessment activities by target group and community and includes the total number of participants: Total Number of Participants: Total Number of Individual Participants in Jackson: Domestic Violence: 17 Rape Crisis Organizations: 5 Health Care Organizations: 51 Disability Service/Advocacy Organizations: 16 Self-Advocates: 30 Total Jackson Participants: 119 Total Number of Individual Participants in Vicksburg: Domestic Violence Organizations: 11 Rape Crisis Organizations: Same as Jackson Health Care Organizations: 6 Disability Service/Advocacy Organizations: 3 Self-Advocates: Same as Jackson Total Vicksburg Participants: 20 Page | 16 Total Number of Activities: Total Number of Activities in Jackson: Stakeholder Interviews: 48 Focus Groups: 8 Total Number of Activities in Vicksburg: Stakeholder Interviews: 8 Focus Groups: 3 Total Number of Interviews Conducted: 56 Total Number of Focus Groups Conducted: 16 Total Number of Needs Assessment Participants: 139 Community (total # participants) Interviews: Leaders Interviews: Service Providers Interviews: Self- Advocates Focus Groups: Service Providers Focus Groups: Self- Advocates Jackson ¥ 17 Domestic Violence Service Providers ¥ 5 Rape Crisis Service Providers ¥ 51 Health Care Service Providers ¥ 16 Disability Service Providers ¥ 30 Self- Advocates Jackson ¥ Catholic Charities Family Shelter (6) ¥ Center for Violence Prevention (2) ¥ Catholic Charities Rape Crisis Center (2) ¥ University of Mississippi Medical Center Emergency Department (2) ¥ The Arc of Mississippi (2) ¥ The ArcÑ My Voice My Choice (self- Jackson ¥ University of Mississippi Medical Center Emergency Department (24) Jackson ¥ University of Mississippi Medical Center Emergency Department Faculty Member (1) ¥ LIFE (Living Independence for Everyone) (1) ¥ NAMI (Mississippi National Alliance on Mental Health) (3) Jackson ¥ Catholic Charities Family Shelter (6) ¥ Center for Violence Prevention (3) ¥ Catholic Charities Rape Crisis Center (3) ¥ University of Mississippi Medical Center Emergency Department (30) ¥ LIFE (Living Independence for Everyone) (5) ¥ NAMI Jackson ¥ LIFE (Living Independence for Everyone) (6) ¥ The ArcÑ My Voice My Choice (selfadvocacy group) (19) Page | 17 Community (total # participants) Interviews: Leaders Interviews: Service Providers Interviews: Self- Advocates Focus Groups: Service Providers Focus Groups: Self- Advocates advocacy group) (2) ¥ Disability Rights Mississippi (formally Protection and Advocacy) (1) ¥ LIFE (Living Independence for Everyone) (1) ¥ Hinds County Mental Health Services (1) (Mississippi National Alliance on Mental Health) (5) Vicksburg ¥ 11 Domestic Violence Service Providers ¥ Rape Crisis Service Providers * ¥ 6 Health Care Service Providers ¥ 3 Disability Service Providers ¥ Self- Advocates * Vicksburg ¥ Haven House (Shelter) (2) ¥ Catholic Charities Rape Crisis Center ¥ River Region Medical Center Emergency Department (0) ¥ Warren County Mental Health Vicksburg ¥ River Region Medical Center Emergency Department (5) Vicksburg Vicksburg ¥ Haven House (Shelter) (9) ¥ West Central United Way (3) Vicksburg Page | 18 Community (total # participants) Interviews: Leaders Interviews: Service Providers Interviews: Self- Advocates Focus Groups: Service Providers Focus Groups: Self- Advocates * The Rape Crisis Center and all of the disability organizations (NAMI, LIFE, Disability Rights Mississippi, The Arc, My Voice My Choice) are served by the same staff as those in Jackson. Self- Advocates attend the same meetings (and thus focus groups) as the Jackson selfadvocates. Services (1) ¥ West Central United Way (0Ñ scheduled but not held due to family emergency) ¥ The ArcÑ My Voice My Choice (selfadvocacy group)* ¥ Disability Rights Mississippi (formally Protection and Advocacy)* ¥ LIFE (Living Independence for Everyone)* ¥ NAMI (Mississippi National Alliance on Mental Health)* Stakeholder Interview and Focus Group Protocols Project staff verbally ascertained passive consent for participation from organization leaders. Individual organization staff and self-advocates were then invited by a project team member to participate in either an interview or focus group. Participating organizations were asked to collect any requests for accommodations from participants and to forward those to the Project Director. There were no forwarded requests for accommodations for interviews or focus group Page | 19 participants. The focus group facilitator also asked all participants at the beginning of the interview or focus group process if any accommodation/or assistance was needed to facilitate ease of participation. Some requests that were accommodated included assistance with holding consent/confidentiality forms for signatures and rearranging seating for better hearing. All interview and focus group participants were given certain information about the data collection process at the beginning of the session: ¥ the importance of confidentiality among participants ¥ a promise there would be no personally identifiable information used or documented in any way in the needs assessment report ¥ all written notes and recorded interview/focus group information would be destroyed once the strategic plan was written by the Project Access Team and approved by the Office on Violence Against Women ¥ no one was under any obligation to participate and could withdraw their participation at any time during the process ¥ project team members would provide domestic violence shelter and rape crisis center information and referral services to those participants who requested it ¥ a domestic violence/rape crisis advocate would be available after focus groups for consultation ¥ Mississippi is a mandatory reporting state if an individual is considered a vulnerable adult and that having a disability does not necessarily make one a vulnerable adult under Mississippi law ¥ accommodations were available for anyone who needs it to allow them to fully participate in the needs assessment process Safety of participants was of utmost importance to the PAT partners during this process. The PAT focus group facilitator read a scripted statement that was approved by the Office on Violence Against Women related to mandatory reporting in Mississippi prior to beginning the session. The facilitator did not ask questions about personal abuse experiences and none of the participants disclosed abuse. Team members with expertise in sexual assault and domestic violence who could serve as a referral source after the meeting were available should anyone request referral information. During the focus groups, the facilitator used several strategies for making sure that everyone was able to contribute to the process. For instance, the facilitator asked if anyone had anything else they would like to add before the group proceeded to another question and the facilitator went around the room to each person to make sure they had an opportunity to speak if they so chose. The facilitator made sure that all participants knew that it was fine to ÒpassÓ on any question. Facilitators asked questions in several different ways and had alternative questions or ÒprobesÓ to use to elicit information that is more detailed or to steer the discussion back to the question at hand if the discussion strayed. The PAT provided healthy snacks for focus group participants. All self-advocates received a $25 gift card and note of appreciation along with contact information for the Project Director. Each individual interview or focus group was audio-recorded and either the project team interviewer or the focus group project team assistant facilitator took handwritten notes. The Page | 20 handwritten notes, participant feedback forms, consent forms, and audiotapes were placed in a sealed envelope and returned to the Project Director. Feedback forms from participants and PAT partners who facilitated the interviews or focus groups were reviewed for needed changes in the process. Feedback from all facilitators and participants were positive and did not require any changes in process. All audio taped sessions and handwritten notes were transcribed by the project Administrative Assistant. All session materials were coded to prevent any link to an individual or organization and were placed in a secure location under the supervision of the Project Director and Administrative Assistant. Electronically based session information (transcripts) was secured on the drive shared only by the Project Director and the Administrative Assistant and will be deleted from the shared drive upon approval of the projectÕs strategic plan. The project team staff remained acutely aware of the sensitivity of information about community organizations that might have been obtained during the data gathering phase of the needs assessment process. The project team did not include any information that could be construed to be detrimental to a community organization or staff member in this needs assessment report or any other document. The ultimate goal of the needs assessment was to strengthen community organization collaborations, not to jeopardize relationships. Data Analysis Data obtained from the needs assessment process were compiled and analyzed at the group aggregate level by PAT partners. As interview and focus group data were transcribed, PAT partners were given written copies for their review. Each partner independently coded themes for each focus group and interview for each target location (Jackson and Vicksburg) and type of organization (domestic violence, sexual assault, disability, and health care service providers and self-advocates). At the conclusion of the needs assessment process, the PAT partners came together to discuss the identified themes. Themes were written on a large white board so that the entire group could review them. After much discussion, consensus was reached on common themes. After the PAT partner meeting, all themes were compiled into comprehensive tables (See Appendix A). Needs Assessment Strengths and Challenges Strengths A major strength of the needs assessment process for the project was the initiation and strengthening of organization and staff relationships within each of the target communities. The initial stakeholder meetings the PAT partners facilitated in each community served to stimulate the thinking of the key stakeholders in the direction of violence against individuals with disabilities. The meetings promoted initial discussion about the project and about key Page | 21 stakeholder organization missions. The attainment of stories, observations and impressions of voices across the key organizations serving individuals with disabilities within each targeted community was another strength of the needs assessment. The Project Access team aimed to involve domestic violence, rape crisis, and health service provider organizations as well as disability-specific organizations. The project team specifically identified health care organization voices as typically lacking in discussions about violence against individuals with disabilities. The project team cites as a victory the numerous health care professionals who were willing to come to the table to discuss the issues and to commit to participate in the project. An additional strength that emerged from the assessment process was that of the voices of selfadvocates. Many self-advocates indicated appreciation to the project team for providing them with an opportunity to voice their opinions and experiences about accessing services in their communities. Challenges After approval of the Needs Assessment Plan by the Office on Violence Against Women, the project team was advised by the University of Mississippi Medical Center Office of Research that the needs assessment process needed to be vetted by the Institutional Review Board (IRB) because of the participation of individuals with disabilities who might be considered within a vulnerable population. An application for an exempted review was submitted to the School of Nursing Associate Dean of Research for review. Upon review of the proposal, the recommendation was made to resubmit as an expedited review application format. Before the IRB application could be accepted for review, all project team members including project staff had to complete and pass an online 18-module human subjects research course. This required course completion and review delayed the implementation of the needs assessment process. Once project team members and staff had successfully completed this course, the IRB expedited review proposal was submitted and accepted for review by the IRB. The expedited review proposal was reviewed and the project was determined to not be under the purview of the IRB. Once that finding was obtained from the IRB, the needs assessment process was implemented. The project team encountered a challenge in involving the targeted numbers of individuals proposed in the needs assessment plan. It was difficult to bring established groups of selfadvocates together for focus groups because these self-advocates rarely come together as a group. This required some self-advocates participating via face-to-face interviews. As anticipated, most leaders required individual interviews as did most organization staff because of reduced staff numbers or the physical inability to get staff to come together in a focus group setting. During this period, there were also changes in the leadership of multiple organizations and the subsequent transition time between leaders. Because of these leadership changes during the needs assessment process, it was necessary to reintroduce and get buy-in for the project and needs assessment process from the new leaders. Page | 22 Key Learning Areas and Findings The needs assessment was designed to provide information to the Project Access team about one rural and one urban Mississippi community in relation to the potential for collaborative efforts in their responses to women with disabilities who have experienced domestic violence or sexual assault. The themes were organized into key learning areas for this needs assessment: ¥ strengths and gaps in crisis response in an urban and a rural community; ¥ strengths and gaps in ongoing service delivery such as counseling, transportation and shelter in an urban and a rural community; and ¥ similarities and differences in accessibility and delivery of services between urban and rural communities in Mississippi. Responses to these learning requests came from the following constituencies: ¥ domestic violence service organizations, ¥ rape crisis service organizations, ¥ disability service organizations, ¥ health care organizations; and ¥ self-advocates (individuals with disabilities) The following section of the Needs Assessment Report highlights relevant findings for the targeted communities in the key learning areas. Page | 23 Section 4 Discussion of Key Findings and Their Implications Needs Assessment Findings The findings discussed in this section are organized based on the goal statements developed by the PAT for the needs assessment. The findings have not been prioritized nor is the listing order significant. Prioritizing of findings will occur during the strategic planning process. Quotes from interview and focus group participants have been placed throughout the discussion of findings to illustrate main themes. A summary of interview and focus group themes broken down by type of participant and by community may be found in Appendix A (pages 44-81). PAT partners referred back to this summary throughout the development of key findings and their implications. Strengths of Crisis Response and Ongoing Service Delivery in Pilot Communities Finding: There are many community-based organizations within both pilot sites that contribute in a positive way towards services provided for a person with a disability. Community-based organizations are the backbone of access to services for those individuals with disabilities. It was noted throughout the interviews and focus group sessions that without community-based services, most of the organizations involved in the needs assessment could not provide the services needed by people with disabilities. It was clear that none of the participating organizations had all of the services that might be needed by a client. Informal networking and cooperation among organizations have developed within both communities so individuals with disabilities might access needed services. Domestic violence, rape crisis, disability and health care service providers were asked what other community organizations, agencies, collaborations or partners they found helpful in providing services to individuals with disabilities. Organization staff in both pilot sites identified community-based non-profit organizations as crucial for attainment of services for individuals with disabilities. They agreed that non-profit organizations are key resources for obtaining items such as medical equipment and medications but that there are still major gaps in the fulfillment of some needed services such as housing and transportation. All participants agreed that the hospitals in both pilot sites do a good job in providing medical care for those with disabilities. Domestic violence, rape crisis, disability and health care organization leaders all agreed with staff that community-based non-profit organizations are necessary for attainment of services for individuals with disabilities. Page | 24 Self-advocates were asked in individual interviews and focus groups what services in their community provides them with the best assistance. These individuals identified a wide range of services: medical, disability, education, rehabilitation, non-profits and crisis centers. Finding: Domestic violence, rape crisis, disability and health care service providers identified staff as the main strength of their organizations. Domestic violence, rape crisis, disability and health care service providers identified staff as being the primary strength of their organizations in providing services to persons with disabilities. Specifically, hospital staff from both pilot sites identified Sexual Assault Nurse Examiners (SANEs) and social workers as being strengths. Disability service providers concurred that their staff is their primary strength. All of the disability organizations have staff members who have disabilities and they identified their staffsÕ understanding of the experience of having a disability and their compassion toward the person seeking services as being beneficial for service provision. Domestic violence shelters from both pilot sites indicated that their willing, experienced staffs are strengths. Staff from all three shelters agreed that staff longevity is crucial to successful service delivery for those with disabilities. Health care organization leaders from both communities also identified SANEs as strengths of their organizations. Family violence shelter leaders agreed that experienced, committed, longemployed staff contribute to the strength of their organizations. Another strength identified by both organization leaders and staff is that organization staffs are willing to seek resources for individuals with disabilities wherever they may be. They are willing to network anywhere within the state to attain needed resources. Self-advocates related that there are specific things that make service providers the best: they have knowledge about disabilities and services needed, they acknowledge the disability, they are truthful, they acknowledge the person with the disability, they are compassionate, caring, nice, helpful, and they say Òthank youÓ. Self-advocates stated that service providers that are the best donÕt talk ÒatÓ or ÒaroundÓ youÑthey talk ÒtoÓ you. Several self-advocates indicated that the best service providers do not share too much information about someone else. They said that if service providers share too much about someone else then they would do the same with your information. ÒI like it when they talk to us and when they listen to us.Ó --self-advocate Gaps of Crisis Response and Ongoing Service Delivery in Pilot Communities Finding: Domestic violence, rape crisis, disability and health care service providers experience a wide range of comfort level when providing services to a person with a disability. Page | 25 A major theme running throughout the needs assessment interviews and focus groups was that of comfort in providing services for individuals with disabilities. As might be expected, there was a wide range of comfort expressed by direct service providers. The PAT found that there was little to no training or experience in providing services to individuals with disabilities. The Project Access Team believes that the best service comes from providers who have a solid level of comfort when providing services to persons with disabilities. When asked about their comfort level in providing services to a person with a disability, direct service providers from both pilot sites indicated they experience a wide range of comfort levels. They ranged from not very comfortable to very comfortable. Two situations commonly caused providers to not be very comfortable: when the person seeking services had a psychiatric/mental health disability or when family members intervened. Health care and disability staff indicated a higher comfort level with all types of disabilities. Disability and health care organization leaders agreed that their staffs have a high comfort level in providing services for those with disabilities. Family violence shelter leaders all agreed that staff members in their organizations are never completely comfortable with providing services for someone who has a disability. They indicated that staff comfort level depends on the type of disability, severity of disability and funds available to provide services. All family violence shelter leaders indicated that those with a mental health disability provide the biggest challenge to staff comfort level. ÒI have taken care of patients who have mental illness associated with post traumatic stress disorder that scared me, their reactions to things like sights and certain sounds and even odors could just make them completely react very violently in just a split second. I also had one patient that I took care of that kind of fits this description. I never felt really comfortable around him, I never felt safe. I recognize it from a lot of people and IÕve seen this particularly with students who get very sickened by the sight of the disabilities, because where I worked thereÕs often guys that have had testicles blown off or arms blown off, legs blown off, eye sight gone or even significant combinations of all those. IÕve seen students whose reactions to the physical disabilities is palpable. Physical disability doesnÕt seem to affect me too much. The only other time I really felt uncomfortable was when I felt physically scared.Ó --health care provider (staff) Finding: There is a need for continuing training for all service providers as well as selfadvocates in the areas of domestic violence, sexual assault and disabilities. Direct service providers in both communities were asked about gaps in the services of their organizations and communities in providing services for women with disabilities who are victims of domestic violence or sexual abuse. Participants indicated that there is a lack of knowledge about domestic violence, sexual assault and disabilities within their organizations and communities. They also indicated that there is a lack of knowledge about possible differences in Page | 26 the experience of domestic violence and sexual assault when someone has a disability. These direct service providers discussed the need for cross training opportunities to decrease this lack of knowledge for organization staff. Domestic violence and rape crisis center leaders in the Jackson community agreed that staff training is needed to provide appropriate services to women with disabilities. Direct service providers from all organizations in both communities agreed that public awareness through education and training opportunities is crucial to persons with disabilities being able to access services. They indicated that self-advocates as well as citizens without disabilities need more awareness of the issues surrounding domestic violence and sexual assault including resources available. Self-advocates indicated there is a general lack of understanding by service providers that persons with disabilities have unique needs. They said that service providers need more education and training on all aspects of what it is like to live with a disability. They indicated that service providers need training on how to assess someone with a disability for abuse. ÒWhile we may not have a lot of education on how to counsel someone whoÕs been raped, we will have a better understanding on how it impacted them in terms of their disabilities. There are difficulties in leaving the situation because you donÕt have as many places to go or none that is acceptable, or a way to get there, so itÕs more difficult to leave the situation. So I think that we would understand that more than a lot of other people.Ó --self advocate Finding: There is a need for recognition and respect for individuals with disabilities. Self-advocates were asked what advice they would give a person who is serving people with disabilities about how to serve them better. Self-advocates, without exception, said that the service provider should acknowledge the person and their disability. ÒKnow that I know what IÕm talking about, itÕs my disability.Ó --self-advocate Service providers should be sensitive to all issues that might affect the person such as transportation challenges and limitations imposed by the disability. They also said the service provider should treat the person with the disability with respect Òno matter whatÓ. Selfadvocates said that staff should be accessible to the person and if staff cannot provide the needed service, find someone who can. They stressed that the service provider should follow-through Page | 27 with what is promised and if they cannot then they should explain why they couldnÕt. Selfadvocates also put a premium on honesty from service providers. ÒSay what you mean and mean what you say.Ó --self-advocate Self-advocates expressed a desire for service providers to be trained on how to better understand people with disabilities. They indicated that understanding comes from listening to what is said. They recommended that service providers not assume anything about their clients but instead get to know them as people and if you are going to assume anything: ÒPut this on a bumper sticker: When you see, speak or hear from a person with a disabilityÉ.ASSUME COMPETENCE!Ó --self-advocate Self-advocates gave examples of what a service provider said or did that made them not want to share information with the provider: ÒJust because we have a disability we are treated as children.Ó --self-advocate Finding: There are many physical, programmatic and attitudinal barriers for individuals with disabilities when attempting to access services. A common finding among domestic violence, rape crisis center, disability and health care service provider staff and leaders is that many disability-related services, medical services and other community-based services are not available after hours or on the weekends. Participants indicated that this presents a huge challenge for those trying to provide services for people with disabilities. In addition, many staff do not have knowledge of all of the potential community resources that are available and feel like they are constantly Òtracking downÓ accessible services. The Jackson Rape Crisis Center provides counseling services for individuals from Vicksburg because Vicksburg does not have a crisis center. Domestic violence and rape crisis staff and leaders from Jackson did not indicate that providing services for the Vicksburg community Page | 28 presented a challenge however, leaders in Vicksburg stated that not having a crisis center in their community presented a huge challenge for their staff. Accessing services at the Jackson Rape Crisis Center presents challenges in the areas of transportation and staff. Not only does accessing services in Jackson require a physical means of transportation from Vicksburg but it also requires funding staff to be away from the domestic violence shelter for an extended period. All organization staff and leaders in both pilot sites agreed that both communities need more programs for individuals with disabilities. They all agreed that funding would be necessary to attain that goal. Several service providers recommended that additional accessible recreational programs be developed in each community for those who have disabilities as well. Another common finding among domestic violence, rape crisis center, and health care service provider staff and leaders is that better service provision will come with better understanding of the lived experience of having a disability. Most of these participants expressed a higher comfort level in providing services for an individual with a physical disability. They expressed less comfort in providing services to individuals with psychiatric or mental health disabilities. Speaking about persons with psychiatric or mental health disabilities: ÒI stay away from those because I know that I canÕt handle it, so I havenÕt put myself in that position.Ó --domestic violence service provider Many service providers agreed that there are other attitudinal barriers to accessing services. They discussed the issue of those with hidden disabilities who are challenged within the community when they access services. For instance, one person gave an example of someone with a cardiac disability being challenged by local citizens for parking in an accessible parking spot. ÒPeople prejudging them to some degree, because a lot of times you see a person with a disability and you think, if theyÕd been sexually abused then they brought it on themselves or something. People being prejudice against people with a disabilityÉlooking upon them in a different manner.Ó --direct service provider Self-advocates were asked ÒWhat is the biggest barrier youÕve faced when you tried to get services?Ó These participants replied that the biggest barriers included waiting for services, double talk from staff, confusion about eligibility qualifications for services, finding the right person to talk with, staff not listening and to get staff to understand needs. All except one self Page | 29 advocate agreed that they would not go back to an organization for services if their needs were not accommodated the first time they went. One self-advocate described a time when they did not go back to an organization because they were not accommodated: ÒThere was a time when I was in a restaurant and they totally ignored me and talked to the person I was with. I placed my order and I got up and left.Ó --self-advocate Self-advocates also indicated a need for more accessible services to be available. They said they wanted not just more types of services but more choices of the types of services that are available. They do not like it that some services have a monopoly in their area and they are forced to use those services or none at all. Finding: There are many education and capacity-building challenges for organizations that serve individuals with disabilities. When direct service provider staff and organization leaders of all organizations in both pilot communities were asked if staff have received education or training on all types of disabilities and how to respond to persons with disabilities who seek services they all responded that this was a gap in staff preparation. Health care organization staff and leaders reported some education and training in the areas of domestic violence, sexual assault and some types of disabilities. Domestic violence and sexual assault service providers and leaders identified possible orientation training or follow-up in-service on domestic violence, sexual assault and possibly some types of disabilities. Disability organization staff and leaders indicated that they received ongoing training on disabilities but rarely any training on domestic violence or sexual assault of an individual with a disability. They all agreed that more education and training opportunities for organization staff would increase the organizationÕs capacity to provide appropriate services for those with disabilities who have been abused. Finding: Communication between and among organizations and individual service providers related to services for individuals with disabilities remain a challenge. Communication between and among organizations who provide services for individuals with disabilities who experience domestic violence or sexual assault is seen as an ongoing challenge by organization staff and leaders from both pilot communities. Specifically, being able to communicate with needed organizations after hours and on the weekends was seen as a major challenge. Being able to get follow-up information on referrals was seen as a barrier to service provision. Health care providers especially indicated frustration at making referrals and never seeing or hearing from the patient again, thus not knowing if the person received needed resources. Page | 30 Similarities and differences in accessibility and delivery of services between urban and rural communities in Mississippi, including a review of the policies and practices already in place. Finding: Effecting policy and procedure changes within many of the targeted organizations will be a long and arduous process. Interviews and focus groups revealed similarities and differences in accessibility and delivery of services between the pilot communities. All direct service staff and leaders in both communities indicated that their organization strives to provide accessible services to those who have disabilities. What became clear in the discussions was that no one organization was able to provide completely accessible services. All organizations reported that they counted on other community organizations to serve as referral sources for their clients. Physical, programmatic and attitudinal barriers presented challenges for all organizations. When asked how change occurs in their organization, leaders indicated that change could start at the staff or management level and then would have to go through the process adopted by their organization. Non-profit organizations indicated that changes must ultimately be approved by their Board of Directors. Leaders of state organizations indicated change happens in a very slow manner: ÒUnless some catastrophic event happens that causes publicity, legal issues, risk management, or personnel issues. That will drive a quick response related to protecting the patient, protecting the organization, or protecting the employees--and really in that order. I know the patient comes first.Ó --health care organization leader The leaders of state organizations agreed that changing policy and procedures within their domain would be a very long and arduous process. Leaders of non-profit organizations indicated changing policy and procedures would require going through their Boards of Directors. They discussed that a successful policy and procedure change would depend a lot on funding required for the change and whether funds were available. They stated that funding for new processes and services was always a challenge. When organization leaders were asked how budget decisions are made in their organization, there was a wide range of answers. Leaders in state organizations discussed the state budgeting process that starts at the department management level and goes through the state legislature. They indicated that politics frequently plays a big role in budget approval. Non-profit community organization leaders (domestic violence shelters, rape crisis center, disability advocacy, United Way, etc.) indicated that the budget starts with the executive directors with input from staff and must be approved by Boards of Directors. Page | 31 Potential partnerships and collaborations among organizations to provide an appropriate collaborative community response and delivery of services. Finding: Community-wide communication is paramount to a successful collaborative community response. Staff and leaders from all participating organizations in both pilot sites indicated that having community-wide communication among service providers and organizations was imperative for an appropriate and successful community response and delivery of services. Communication is believed to be enhanced by intensive networking among collaborating organizations. Participants agreed that some type of community advisory board would promote communication and collaboration among organizations. They suggested that regular meetings of the advisory board would support enhanced communications. Participants also suggested that a system should be in place to make sure that people received appropriate and accessible follow-up care after they leave one organization and are referred to another. This system would include a feedback component so the referring source would know the individual was able to continue receiving needed services. Self-advocates also agreed that there should be follow-up and that follow-up should include accountability for making sure people get the services they need: ÒI think that we should have a continuation of communication (follow-up). We want to know that the person is being taken care of. We want to know that the job is being doneÉwe need accountability.Ó --self-advocate Education and cross training was identified as one other needed component for not only increasing knowledge but also increasing cross-organization networking and communication opportunities. One health care service provider stated: Ò If only we had a little more contact with each other, maybe if they came in [to the hospital]. For example if housing, medical equipment companies would come in and do in-services at lunchÉwe tend to refer to people who come in more often because we are familiar with them and we know them, build more of a friendship.Ó --health care service provider Self-advocates agreed that better communication among service providers and their organizations would enhance the services they receive in the community. When asked how they find out about things that are going on in their community, self-advocates responded that they Page | 32 depend on these information sources: local newspapers, word of mouth, Internet, email, public community meetings, television, referrals and telephone calls. Self-advocates indicated that they use various methods to seek services in their communities: their circle of friends, the telephone, personal relationships with care providers, service provider referrals and through attendance at disability conferences. Self-advocates were asked what the best way is to get information to women with disabilities about services available to them in their communities. They again noted a variety of ways of obtaining this information. They said that medical personnel should make the information available to them. Information could also be communicated via the US mail, churches, newspapers, announcements at trainings and meetings, via telephone, printed materials (including flyers), grocery stores, schools and through someone going door-to-door. They also identified community gatherings, health fairs, drug stores, Wal-Mart, the library, radio programs, where they work and putting flyers or brochures on cars as additional ways they believe information about services could be made available to them. Finding: A collaborative community response may be enhanced by having as many service providers under one roof as possible. Direct service provider staff from all organizations in both pilot communities indicated that having as many service providers as possible under one roof would strengthen a collaborative community response. Participants indicated that this type of service delivery system would make it easier for the person with a disability to obtain prompt, accessible services. During interviews and focus groups, these participants also discussed how this Òone-stop shopÓ format would increase communication among service providers and would provide easy access to services. This one-stop shop collaborative would have a transportation plan in place for persons accessing the system. Staff noted that if a one-stop shop format was not possible then there should be a comprehensive directory available for all organizations that detailed resources available in each community. Organization leaders from both pilot communities did not indicate a desire to have all services under one roof but did agree that there needs to be a plan for collaboration and there should be an emergency response team available 24 hours per day seven days a week to respond when needed. These emergency response teams would have disability experts on them. Leaders and staff from both pilot communities recommended that a trauma checklist or protocol be developed for emergency response teams. ÒThere would be one localized location, anyone with or without a disability wouldnÕt have to go to several different places to receive services, because all of those resources would be in one place. Just one huge coalition, with everyone there with one goal: to serve each individual.Ó --direct service provider Page | 33 When asked about what advice they would give a service provider to help them better provide services for those with disabilities, self-advocates also indicated a desire for community organization staff collaboration and coordination of services. ÒMaybe coordination between them especially for people who needed to access multiple agencies, so it wouldnÕt be like starting over from scratch every time. Have one person who could shepherd you through the processing, develop a relationship with them. They would be able to understand your needs, to be able to communicate, advocate for you, to carry you to services if needed.Ó --self-advocate It is important to note that interview and focus group participants noted that a collaborative community response should be available for both those with and without disabilities. Finding: A collaborative community response would enhance the power of each organization to respond to those seeking services. Domestic violence, rape crisis, disability and health care service providers and organization leaders all agreed that a collaborative community response would strengthen the ability of each organization to respond in an appropriate way for those seeking services. Organization staff and leaders also suggested that a plan for collaboration along with an advisory board and significant networking among collaborators would strengthen each organizationÕs capacity to respond when needed. All participants agreed that communication is key to a successful collaboration. In addition, disability direct service providers suggested that all collaborative partners should work together toward a solution for identified problems. This would ensure that all organizations are aware of and supportive of policies and procedures for responding to those accessing services. Implications of Key Findings Implications of Key Findings for Individuals ¥ Almost without exception there was recognition of the need for continued training on the interactions of domestic violence, sexual assault and disabilities by organization leadership and staff. Across the board there were few service providers who had received any formal training in this area. Few service providers had received organizationprovided training such as in-services or continuing education opportunities in the area of violence against individuals with disabilities. Without exception, service providers stated they would welcome training opportunities. Page | 34 ¥ Many self-advocates discussed the need for service providers to recognize them as a person first and to offer them respect as a person. They indicated service providers need to listen to them and respect their choices. Self-advocates discussed the stigma related to having a disability and many indicated feeling like second-class citizens. Many self-advocates offered training of service providers as one means to improving this disparity. ¥ It became apparent from the interviews and focus groups this project will not be able to impact some of the key challenges for individuals with disabilities in the targeted communities. Poverty, a waiver program with over 2,000 on the wait-list and inadequate to no transportation assistance are just a few of the challenges discussed by both service providers as well as self-advocates. The Project Access Team learned disparities in these services occurred in both rural and urban areas with the rural targeted location having more challenges. Even though the grant will most likely not be able to impact these challenges, the Project Access Team believes it is important to have the discussions in a variety of settings because all of these challenges affect the services a person might need and an organization might provide. Implications of Key Findings for Organizations ¥ Physical, programmatic and attitudinal accessibility remain significant barriers to obtaining services for individuals with disabilities. Accessibility assessments were discussed by participants as one means by which an organization might determine where these barriers exist and actions might be taken to alleviate the barriers. ¥ There is a clear need for skill training and capacity-building among organizations that serve individuals with disabilities. Formal education programs, continuing education offerings, and in-service programs were offered as suggestions for skill training and capacity-building within organizations. ¥ There is a clear desire by direct service providers to have better communications among other service provider organizations. Several participants indicated they would be more willing to make referrals if they knew the services other organizations provided and if they knew the service providers in other organizations. ¥ Organization leadership and staff consistently indicated a willingness to implement policies and procedures to effect positive change within their organizations related to the provision of services to those with disabilities. This willingness came with the caveat that changing policies and procedures in some organizations is a long, complicated process. Several individuals suggested a review of organization current policies and procedures related to individuals with disabilities would be needed to begin the change process within their organization. Implications of Key Findings for Systems ¥ Communication among community organizations is key to developing a system-wide approach to responding to individuals with disabilities who have been abused. Page | 35 Communication was repeatedly identified as the first step to building a collaborative response. ¥ Many participants (both service providers as well as self-advocates) indicated a desire to have as many services as possible under one roof. Reasons given included the desire to have a personal relationship with referral organizations/providers, the ability of the person seeking services to move freely within one environment to seek needed services, and the possibility of the person being able to obtain all needed services within one timeframe. ¥ A collaborative systems approach to service provision would allow all resources to bind together to leverage their knowledge and skills to provide best practices when serving individuals. Organizations could collaborate on education and training opportunities and other activities that would positively impact the services provided to an individual with a disability who experienced abuse. Summary of Key Findings The key findings of this needs assessment are 1. There is a need for continuing training for all service providers as well as self-advocates in the areas of domestic violence, sexual assault and disabilities. 2. There is a need for recognition and respect for individuals with disabilities. 3. There are many physical, programmatic and attitudinal barriers for individuals with disabilities when attempting to access services. 4. There are many education and capacity-building challenges for organizations that serve individuals with disabilities. 5. Communication between and among organizations and individual service providers related to services for individuals with disabilities remain a challenge. 6. Effecting policy and procedure changes within many of the targeted organizations will be a long and arduous process. 7. Community-wide communication is paramount to a successful collaborative community response. 8. A collaborative community response may be enhanced by having as many service providers under one roof as possible. 9. A collaborative community response would enhance the power of each organization to respond to those seeking services. Page | 36 Selection of Organizations from Pilot Communities The implications identified from the needs assessment data allowed the PAT partners to achieve the three global goals of the process: 1. to gather information to determine the specific organizations within the selected communities to include in the project implementation phase, 2. to answer the projectÕs questions to identify strengths, challenges, and needs for organizations, staff and self-advocates within each community, and 3. to identify potential partnerships among community organizations. The findings allowed the PAT partners to select organizations from each of the targeted communities to participate in the strategic planning and implementation process. The project team determined the findings contained important implications for strategic planning for the individual, organizations and for systemic change. Selection of Organization Pilot Sites for Project Focus The PAT partners knew meaningful systems change would not be feasible in all of the organizations identified to participate in the needs assessment in each community. Project partners developed the following criteria for determining which organizations would be included in the strategic planning and implementation process: 1. Pilot organizations would demonstrate quality buy-in to the project through verbalization and through their active participation in initial meetings with the project team. These organizations would express a strong interest in improving domestic violence and sexual assault crisis services and ongoing services for individuals with disabilities. Leadership in the organizations would be willing to be an active participant in the project. 2. Pilot organizations would provide crisis-related services or ongoing services to individuals with disabilities who experience abuse including advocacy services. 3. Pilot organizations would have the capacity to be a part of a Disability Abuse Response Team (DART) as well as to evaluate and change policies and procedures to improve access to services. The organization would be willing to change or modify how the organization serves people with disabilities. 4. Pilot organizations would be willing to work with the project team to receive technical assistance and to develop collaborative partnerships within the community. The analysis of each of the above criteria for each community reflects findings from the needs assessment that the project team felt was most relevant to the organization selection. Jackson, Mississippi Page | 37 Criterion 1: Which pilot organizations in Jackson demonstrate quality buy-in through verbal and active participation in initial meetings with the project team? Which express a strong interest in improving domestic violence and sexual assault crisis services and ongoing services for individuals with disabilities? Are leaders in the organization willing to be an active participant in the project? The PAT partners agree all of the Jackson organizations that attended the initial meetings with the project team demonstrated quality buy-in through verbal and active participation in the meetings and the organizations all expressed a strong interest in improving domestic violence and sexual assault crisis services and ongoing services for individuals with disabilities. All of the leaders in the organizations were willing to be active participants in the project. The interest and enthusiasm was strong from all involved. Criterion 2: Which pilot organizations in Jackson provide crisis-related services or ongoing services to individuals with disabilities who experience abuse including advocacy services? Further analysis of the organizations in Jackson showed Catholic Charities Family Shelter, The Center for Violence Prevention (the second family shelter in the Jackson-Metro area), Catholic Charities Rape Crisis Center and the University of Mississippi Medical Center provided crisisrelated as well as ongoing services to individuals with disabilities who experience abuse. Catholic Charities Rape Crisis Center in Jackson also provided those services to individuals in Vicksburg. Criterion 3: Which pilot organizations in Jackson have the capacity to be a part of a Disability Abuse Response Team (DART) as well as to evaluate and change policies and procedures to improve access to services? Which organizations would be willing to change or modify how they serve people with disabilities? Catholic Charities Family Shelter, The Center for Violence Prevention, the University of Mississippi Medical Center, and Catholic Charities Rape Crisis Center were found to all have the capacity to be part of a DART in Jackson. All organizations have the ability to evaluate and change policies and procedures to improve access to services and were willing to change or modify how they serve people with disabilities. Criterion 4: Which pilot organizations in Jackson would be willing to work with the project team to receive technical assistance and to develop collaborative partnerships within the community? Catholic Charities Family Shelter, The Center for Violence Prevention, the University of Mississippi Medical Center, and Catholic Charities Rape Crisis Center agreed to work with the project team to receive technical assistance and to develop collaborative partnerships within the Jackson community. These four Jackson organizations were chosen to participate in the implementation phase of this grant project. Page | 38 Vicksburg, Mississippi Criterion 1: Which pilot organizations in Vicksburg demonstrate quality buy-in through verbal and active participation in initial meetings with the project team? Which express a strong interest in improving domestic violence and sexual assault crisis services and ongoing services for individuals with disabilities? Are leaders in the organization willing to be an active participant in the project? The PAT partners agrees all of the Vicksburg organizations that attended the initial meetings with the project team demonstrated quality buy-in through verbal and active participation in the meetings, and the organizations all expressed a strong interest in improving domestic violence and sexual assault crisis services and ongoing services for individuals with disabilities. All of the leaders in the organizations were willing to be active participants in the project. The interest and enthusiasm was strong from all involved. Criterion 2: Which pilot organizations in Vicksburg provide crisis-related services or ongoing services to individuals with disabilities who experience abuse including advocacy services? Further analysis of the organizations in Vicksburg showed Haven House, the family shelter; Warren County Mental Health Services and River Regions Medical Center provided crisisrelated as well as ongoing services to individuals with disabilities who experience abuse. Catholic Charities Rape Crisis Center in Jackson also provided those services to individuals in Vicksburg. LIFE of Mississippi provided ongoing services to individuals with disabilities both in Vicksburg and Jackson. Criterion 3: Which pilot organizations in Vicksburg have the capacity to be a part of a Disability Abuse Response Team (DART) as well as to evaluate and change policies and procedures to improve access to services? Which organizations would be willing to change or modify how they serve people with disabilities? Haven House, River Regions Medical Center, LIFE of Mississippi, Warren County Mental Health Services and Catholic Charities Rape Crisis Center were found to all have the capacity to be part of a DART in Vicksburg. All organizations have the ability to evaluate and change policies and procedures to improve access to services and were willing to change or modify how they serve people with disabilities. Criterion 4: Which pilot organizations in Vicksburg would be willing to work with the project team to receive technical assistance and to develop collaborative partnerships within the community? Haven House, River Regions Medical Center, LIFE of Mississippi, Warren County Mental Health Services and Catholic Charities Rape Crisis Center agreed to work with the project team to receive technical assistance and to develop collaborative partnerships within the Vicksburg community. These four Vicksburg organizations were chosen to participate in the implementation phase of this grant project. Page | 39 The needs assessment findings assisted the PAT partners in the final determination of participating organizations in each community during the Strategic Plan implementation phase: ¥ Jackson area: o Catholic Charities Family Shelter o The Center for Violence Prevention o Catholic Charities Rape Crisis Center o LIFE of Mississippi ¥ Vicksburg area: o Haven House o Catholic Charities Rape Crisis Center (same as housed in Jackson) o LIFE of Mississippi (same as housed in Jackson) Background Information on Selected Organizations Jackson Sites ¥ Catholic Charities Family Shelter Catholic CharitiesÕ Domestic Violence Services Center is committed to breaking the cycle of family violence. The Center offers counseling and support to help victims recover from their abuse and develop healthier future relationships. The Center also offers services for adults who are willing to unlearn their abusive behavior. Services are available to those involved in spouseabuse, child-abuse, sibling violence, violence by a child against a family, and violence against elderly family members. The Jackson Shelter for Battered Families is designed to help victims of spouse abuse and their children during the critical time in life. The shelter provides 30-day temporary emergency shelter, support and counseling (including emotional support, short-term counseling and assistance in problem solving) and advocacy through information and referral. Catholic Charities provides therapeutic daycare with an atmosphere free of violence; assuring children are treated with respect. Services include therapy for children, tutoring, sporting events, arts and crafts, potty training, file trips and parental development. Second stage transitional housing provides shelter residents and homeless families from other emergency shelters and homeless facilities with housing for up to one year with 3-month extensions available up to 24 months. This time is given to achieve independence from an abusive relationship, and to provide extended housing and supportive services for families to become independent. The temporary housing with supportive services helps pave the way toward self-sufficiency. The court advocacy program provides support and assistance to victims of domestic violence. The purpose of the Page | 40 program is to provide victims access to court services. By having a liaison, a victim can feel better prepared for the court process and judicial intervention. Services include a court escort, advocacy, education and training, follow-up monitoring and making referrals. The legal assistance clinic provides support and legal representation to victims of domestic violence, sexual assault, and stalking in Hinds, Rankin, and Madison counties. The purpose is to provide victims civil litigation services for emergency and non-emergency protective orders. Other legal services include child custody, restraining orders, housing claims, financial claims, and other feasible claims arising out of or stemming from domestic violence, sexual assault, or stalking. Individual, family and group counseling services are available for those whose lives are disrupted by family violence. Whether the abuse is physical, sexual or psychological, counseling can help family members to cope with the effects of the violence and to develop healthier relationships. The Family Life Program of Catholic Charities supervises these outpatient services. ¥ The Center for Violence Prevention (CVP) CVPÕs mission is: Through our partnership with multiple community organizations and a committed staff focused on the needs of the domestic violence client, the Center for Violence Prevention advocates that every person has the right to a life free from violence. CVP is designed to foster successful rehabilitation from violent and abusive relationships so victims can take back control of their lives and learn to live independently, free from abuse. The program requires clients to take an active role in their case management, participate in therapy, assist in the maintenance of the shelter, prepare their meals, and take part in training. ClientsÕ children not enrolled in school or another day care are required to attend the CVP daycare during normal operational hours. This service allows the women to work or continue their education. Serving a 10 county area in central Mississippi (Rankin, Madison, Hinds, Simpson, Issaquena, Sharkey, Warren, Yazoo, Copiah and Claiborne) since the 1970s, CVP is committed to providing a continuum of services to address the growing populations of at-risk children and adults in the area as it offers an alternative to the continuing cycle of violence, abuse, neglect, and related traumas. CVP has a 24-hour crisis and referral line to assist in immediate needs. Trained personnel provide a wide range of references and resources. CVP provides a home-like setting designed to assist families in need of a safe environment. Services are in place to help these individuals begin a productive life, independent of abusive relationships. Professionals provide individual, family, and group counseling, and out-patient counseling is provided to the community on a sliding fee scale. CVP provides education on domestic violence and related issues to interested organizations and community groups free of charge. CVP can house up to 17 in-shelter and up to 30 in non-shelter. CVP staff includes an executive director, an office manager, a shelter director, one case manager, a daycare director, a therapist, three house managers, a BIP/court advocate, and four support personnel. ¥ Catholic Charities Rape Crisis Center Page | 41 From its very early yearsÑ1837, the Catholic Church in Mississippi has sought to serve the disadvantaged and those unable to care for themselves. Catholic Charities, Inc. received its charter of incorporation from the state of Mississippi in October 1963. Since 1977, the Diocese of Jackson has served 65 counties. The Rape Crisis Center is a program established by Catholic Charities to help eliminate or reduce the incidence of rape and sexual assault through prevention and education. Additionally, the Center provides the coordination of services to victims of rape and sexual assault and to their families and friends. All services are offered free of charge. Services offered include a 24-hour crisis hotline, mental health intervention, crisis intervention, emergency shelter, long- and short-term counseling, community awareness, and court and law enforcement escorts. ¥ Living Independence for Everyone (LIFE) of Mississippi LIFE is a center for independent living under Title VII, Part C of the Rehabilitation Act. In existence since October 1993, LIFE is a private, non-profit organization dedicated to enhancing the lives of individuals with significant disabilities in Mississippi. LIFE has provided core independent living services to more than 30,000 individuals with disabilities throughout the state. Since its inception, LIFE staff, board members, AmeriCorps members and volunteers have provided disability awareness and information to over 150,000 individuals, groups and organizations. LIFE has offices in Tupelo, Greenwood, McComb, Hattiesburg, and Biloxi and the state office in Jackson. The regional offices allow LIFE to provide services throughout the state of Mississippi to anyone with a disability, regardless of the type of disability, their age or their location in the state. All LIFE offices are managed and staffed primarily by individuals with disabilities. LIFE is governed by a Board of Trustees with 100% representation of people with disabilities. LIFE provides the four core services of independent living (peer support, information and referral, skills training and advocacy) as required by law, at no cost. LIFE also provides other independent living services to consumers with disabilities as needed and when funding is available. These services include, but are not limited to, home and vehicle modifications, durable medical equipment and supplies, adaptive technology, rehabilitation engineering and much more. These I.L. services can be costly; therefore, LIFE staff seeks to develop other resources, conduct fund raising events, and apply for grant funding through other organizations and organizations. Currently, LIFE benefits from four local United Way organizations in North, Central and South Mississippi for the provision of home and vehicle modifications to individuals. LIFE has grants or contracts with six other organizations and organizations to provide such services as transition for young adults with special health care needs, transition for people currently living in nursing homes to relocate them back into the community, information dissemination and referral for parents of children with disabilities, and information and training regarding the Americans with Disabilities Act. The director of LIFE is emphatic about the organizationÕs role in ensuring that women with disabilities and women of children with disabilities who experience domestic violence and sexual Page | 42 assault have full access to the programs and services they need. LIFEÕs Jackson office is the state office for the organization. The director and assistant director have their offices in Jackson. LIFE staffs three independent living specialists in the office, one of which is a female. As with many organizations serving people with disabilities, LIFE has served victims of domestic violence and sexual assault informally because it was necessary for them to do so. Vicksburg Sites ¥ Haven House Haven House family Shelter, Inc. (Haven House) is a non-profit, non-governmental victim service organization, headquartered in Vicksburg, Mississippi. Established in 1985, the program serves domestic violence victims in the Highway Patrol District 1, which includes Warren, Sharkey, Issaquena, Yazoo, Hinds, Rankin, Simpson and Madison counties. Haven House, has a 22-bed shelter capacity, and provides protection for adults and their children who are victims of domestic violence. The program offers an array of services in-shelter and off-site, including food, clothes, and personal items; 24-hour crisis line support and safety planning, information and referral, and linking; in-shelter referrals; group and individual counseling and support services; case management and advocacy; therapeutic childcare; transitional housing; and transportation. The shelter operates on a 24-hour, 7-day-a-week basis year-round, as a shared living arrangement in which the adults and children participate in scheduled activities and household chores. Haven House staff and volunteers serve as facilitators for the helping network in the community; assisting victims and their children to obtain medical care, counseling, legal advice, Crime VictimsÕ Compensation, housing, TANF and Food Stamps, employment, and whatever else is necessary to empower victims to regain control of their lives and to make effective decisions. Haven House priorities are 1) maintaining the services that are essential to enable victims to break the cycle of violence and build safe, healthy and productive lives, and 2) improving the efficacy of available victim support through the development of a coordinated community response to the needs of domestic violence victims and their children. The overall goal is to foster and support a coordinated response among community law enforcement, medical, prosecution, courts and victim service organizations, bringing about a more victim-centered response to domestic violence and reducing domestic violence crime and victimization. Haven House has a non-discrimination and accessibility policy that is provided in each client intake folder. Clients sign and acknowledgement of their review of this policy. The policy is reviewed with all new staff members and is reviewed with all staff annually. ¥ Catholic Charities Rape Crisis Center See Catholic Charities Rape Crisis Center information listed under the Jackson area. ¥ LIFE of Mississippi Page | 43 See the information on LIFE listed for Jackson area. As a statewide organization, LIFE has always served VicksburgÕs residents with disabilities. LIFEÕs involvement with the Vicksburg community will be further enhanced by the fact that the assistant director, who is the mother of a child with a disability, grew up in Vicksburg and currently lives in a community between Jackson and Vicksburg. Concerns arose related to Catholic Charities Rape Crisis Center and LIFE of Mississippi being included in the selected organizations because each organization covers both communities. Concerns included the workload that would be required of both organizations and the stress that that might put on the organization. PAT partners discussed issues of these organizations covering both communities during the work of the grant with each Executive Director. The organization Executive Directors each indicated their desire to be a part of the strategic plan planning and implementation process and agreed to dedicate one staff member to each community for purposes of the grant. These staff members will work together to make sure organization participation is clearly coordinated and in harmony. Strategic Planning After this Needs Assessment Report has been approved by the Office on Violence Against Women, the PAT partners will engage in a comprehensive strategic planning process. The project team will request a day and a half strategic planning session with Accessing Safety Initiative Associates from the Vera Institute of Justice. The Vera Institute Associate will facilitate a planning discussion to assist the PAT partners to further narrow and define its strategic plan and implementation focus. After the initial strategic planning session, the PAT partners will engage in sincere discussions among its project team members and with key stakeholders from the two selected communities. These discussions will evolve into a strategic plan to address the needs, accessibility and barriers identified in each of the communities. The discussions will also focus on community strengths and the potential for developing collaborative community responses for women with disabilities who have been victims of domestic violence or sexual assault. Sustainability will be a key component of the final strategic plan and will be developed with the commitment of each partnering organization to incorporate all activities through systemic change both throughout the grant period and beyond. Page | 44 Appendix A Interview Themes Interviews with Domestic Violence and Rape Crisis Organization Leaders Interview Question: How good is your organization at providing services to people with a disability? Jackson Leadership Vicksburg Leadership Accessibility ¥ Set up for those who are self sufficient ¥ Not set up for those with severe mental illness ¥ Do good job with basic requirements Accessibility ¥ Provide services for those as far as are capable ¥ Collaborate with other organizations locally or statewide if not able to provide services ¥ Services provided are based on individual needs Interview Question: What other community organizations, collaborations or partners has your organization found helpful in providing services to individuals with disabilities? Not helpful? Jackson Leadership Vicksburg Leadership Collaboration ¥ Difficult to find help for those with disabilities ¥ Strive to use local organizations ¥ Some local organizations donÕt have equipment to help those with disabilities ¥ Need to be able to access resources ¥ Need to have more collaborations, more networking Collaboration ¥ Generally find hospitals, physicians, nonprofits and mental health centers are will to make effort to deal with what people need ¥ Sometimes cannot find resources or organizations donÕt have capacity to provide services Interview Question: What are the strengths in both your organization and in the community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Staff Staff Page | 45 ¥ Committed staff ¥ Need more Òstaff, money, stuff, programsÓ to improve staff strengths in working with individuals with disabilities ¥ Ability to try to access resources donÕt have Community ¥ Being able to collaborate with community organizations would be a strength for services ¥ Long-term staff who are Òtuned inÓ to identifying peopleÕs needs and finding resources ¥ Dedication of staff Community ¥ Strength waxes and wanes ¥ History of working together to find resources for people ¥ Strong United Way which works hard to strengthen other community organizations ¥ Strive to have as little service duplication as possible Interview Question: What are the gaps in services in both your organization and in the community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Services ¥ Need training on how to provide services to women with disabilities Statewide Communication ¥ Need communication about problems in working with individuals with disabilities ¥ Need to be proactive in problem-solving Services ¥ Being able to expand offsite/outreach activities ¥ Do not have a rape crisis center in Vicksburg ¥ Victims of sexual assault who receive counseling services must go to JacksonÕs Rape Crisis Center Staff ¥ Not enough staff to expand services ¥ Not enough advocates to provide court support Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Leadership Vicksburg Leadership Communication ¥ More contact with citizens around the state ¥ Stronger listening skills to use with citizens ¥ Stronger domestic violence network communication Funding ¥ Need money to provide services Page | 46 ¥ Access to emergency information Resources ¥ Resources outside of what is provided at the shelter ¥ Emergency response team containing a cross section of the community and disability organizations ¥ Access to emergency backup when have a person with a disability who needs shelter Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Leadership Vicksburg Leadership Knowledge ¥ Need training on how to provide services to women with disabilities Staff Fear ¥ Fear of not knowing what to do ¥ Fear of lawsuits Staff ¥ Need medical staff to provide needed medical services for women with disabilities ¥ Need adequate shelter staff to provide services Safety ¥ Need safe environment to go to while issues of domestic violence are being sorted out Funding ¥ Need funding to remove barriers Services ¥ Very few services for elders and most elderly have disabilities ¥ Poor shelter accommodations for elder victims ¥ Lack of Rape Crisis Center in Vicksburg Transportation ¥ Problem with transporting victims of sexual assault to Jackson for counseling and followup services ¥ Time required to transport clients to Jackson Knowledge ¥ Few elders recognize themselves as victims of violence Interview Question: Has your staff been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Leadership Vicksburg Leadership Disability Training ¥ None on disabilities Disability Training ¥ Staff have been trained on some, not all Page | 47 ¥ Staff trained in CPR and First Aid types of disabilities ¥ Will ask if donÕt know answers to questions about disabilities ¥ Need additional training Interview Question: How does change happen in your organization? Jackson Leadership Vicksburg Leadership Process ¥ Staff would institute change and then the Board of Directors would approve/disapprove the proposed changes No answer Interview Question: How are budget decisions made in your organization? Jackson Leadership Vicksburg Leadership Budget Decisions ¥ Operate by grants ¥ Budget analyst sets budget up, Chief Financial Officer reviews it, then submits it to the Executive Director who will sign off on it No answer Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Collaboration ¥ Have advisory board that promotes collaboration among organizations ¥ Networking among collaborating organizations ¥ Collaborating organizations need staff to be available at all times ¥ Need good communications among collaborating organizations Protocols ¥ Protocols should be developed that would be appropriate for anyone needing domestic violence/sexual assault services Staff ______________________________________________________________________________ Page | 48 Interviews with Health Care Organization Leaders Interview Question: How good is your organization at providing services to people with a disability? Jackson Leadership Vicksburg Leadership Accessibility ¥ Set up for those who have most types of disabilities ¥ Not set up for those with vision impairment ¥ Policies not in place for service animals ¥ Would not necessarily have provisions for caretakers for persons with cognitive impairment in the intensive care units Accessibility ¥ Meets all ADA requirements ¥ Staff conscious of providing appropriate services Staff Training ¥ Need continuing staff training to deliver services in a culturally sensitive way ¥ Young staff needs training Transportation ¥ Need accessible transportation Interview Question: What other community organizations, collaborations or partners has your organization found helpful in providing services to individuals with disabilities? Not helpful? Jackson Leadership Vicksburg Leadership Collaboration with outside organizations ¥ Non-profit organizations want to partner with the medical center because it is an academic institution and the only level 1 trauma center in Mississippi ¥ More outside assistance with children who have disabilities than there are with adults Collaboration with outside organizations ¥ Some community organizations are amazing Interview Question: What are the strengths in both your organization and in the community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Staff ¥ Sexual Assault Nurse Examiners (SANE) in the pediatric and adult emergency departments and OB-Receiving ¥ Social Workers are available in the emergency department 24/7 Community Non-Profits ¥ Many strong non-profits in community ¥ United Way assists non-profits to be able to do their jobs Staff Page | 49 Weaknesses ¥ Need staff other than emergency departments to be aware of treatment and services for those with disabilities ¥ Organization Social Workers are a strength Interview Question: What are the gaps in services in both your organization and in the community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Follow-up services ¥ Need more in-hospital and community services for women with mental health/psychiatric disabilities ¥ Need staff trained on services available in the community Funding ¥ Organizations run out of money and cannot provide services Communication ¥ All interpreters must be scheduled, none organization-based ¥ Hard to schedule language and deaf interpreters ¥ Better public awareness of accessible services available ¥ More alternate forms of public awareness; alternatives to mainstream media; better word of mouth; non-traditional advertising Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Leadership Vicksburg Leadership Resources ¥ Staff need knowledge about community referral resources available to people with disabilities ¥ Need continuity of resources ¥ Need resources beyond meeting physical needs: social, mental, adjustment Collaboration ¥ Organizations need to give up turf-guarding ¥ Need cooperative spirit ¥ Need to realize need to be around the table Communication ¥ Need timely responses from all organizations ¥ Medical personnel make referrals and never know if patient follows through or not Resources ¥ Staff need knowledge about community referral resources available to people with Page | 50 disabilities from intake to discharge Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Leadership Vicksburg Leadership Communication ¥ SurvivorsÕ inability to communicate with staff ¥ Need more sharing of information between medical staff and law enforcement Collaboration ¥ Organizations need to give up turf-guarding ¥ Need cooperative spirit ¥ Need to realize need to be around the table Inpatient Treatment ¥ May not have rooms/slots available Stigma ¥ Public stigma related to having a disability Funding ¥ Need funding to run programs ¥ People with disabilities have financial dependence Interview Question: Has your staff been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Leadership Vicksburg Leadership Disability Training ¥ Have training on long-standing obvious disabilities like visual and hearing impairment ¥ Little training on mental impairment or invisible impairments Domestic Violence (DV) Training ¥ Emergency Department and psych nurses have had a little DV training ¥ Staff do not have training on legal issues such as mandatory reporting for domestic violence or sexual assault for any person Disability Training ¥ Need continuing staff training to deliver services in a culturally sensitive way ¥ Young staff needs training ¥ Hospital staff need disability training ¥ Have orientation training and annual refresher ¥ Need people with disabilities to do some of the training Interview Question: How does change happen in your organization? Page | 51 Jackson Leadership Vicksburg Leadership Process ¥ Slowly and painfully ¥ Rapid change happens when there is a catastrophic event that causes publicity, legal issues, risk management or personnel issues ¥ Response is usually related to protecting the patient, the organization, and employees (in that order) ¥ Anyone in a leadership position can start the change process Process ¥ Begins at top: Board of Directors to Administrators to Staff Interview Question: How are budget decisions made in your organization? Jackson Leadership Vicksburg Leadership Budget Decisions ¥ Operate by state funds and grants ¥ Simplified answer: Budgets are developed at the department level, sent to the Chief Financial Officer who reviews it, goes through in-house financial hearings and then to the State Institutions of Higher Learning (IHL) (responsible for overseeing all public colleges and universities) who approves it. Overall budget for IHL is approved by the State Legislature ¥ Politics (both internal and external) play a big role in budget decisions Budget Decisions ¥ Staff has input to budget by identifying and evaluating needs and how expense will benefit others ¥ Board sets budget with input from management Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Collaboration ¥ Have advisory board that promotes collaboration among organizations ¥ Networking among collaborating organizations ¥ Collaborating organizations need staff to be available at all times Communication ¥ Need better communication among community organizations ¥ Cooperation among organizations is good Page | 52 ¥ Need good communications among collaborating organizations ¥ Need hotline and websites of interest Interviews with Disability Service Provider Organization Leaders Interview Question: How good is your organization at providing services to people with a disability? Jackson Leadership Vicksburg Leadership Quality of Services ¥ Doing good job of connecting with the community ¥ Are the best at making sure services are the best that can be offered ¥ Good job at providing advocacy services ¥ Good job at providing information and referrals for information donÕt handle ¥ Need financial means to provide excellent services These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Interview Question: What other community organizations, collaborations or partners has your organization found helpful in providing services to individuals with disabilities? Not helpful? Jackson Leadership Vicksburg Leadership Collaboration with outside organizations ¥ Local non-profit organizations ¥ Other local disability organizations ¥ No non-helpful community organizations These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Interview Question: What are the strengths in both your organization and in the community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Referrals ¥ Would refer anyone who contacted them with domestic violence or sexual assault concerns These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Page | 53 ¥ Must know community resources that are available Case Managers ¥ Most individuals accessing services have case managers to help them Interview Question: What are the gaps in services in both your organization and in the community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Collaboration ¥ Need stronger collaboration across the state ¥ Need to reach out and solve problems more quickly Knowledge ¥ Need more cross training among organizations ¥ Need more education between law enforcement and the community These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Leadership Vicksburg Leadership Resources ¥ Staff need knowledge about community referral resources available to people with disabilities ¥ Need updated and detailed referral information ¥ Need more counseling opportunities Networking ¥ Need more contact with people with disabilities to hear what their problems are ¥ Need stronger organization networking ¥ Need a plan These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Page | 54 Collaborative Community Response ¥ Collaborative, coordinated group of organizations to provide services ¥ Have case managers to assist person through the system, advocate for the person Education ¥ Need more trained individuals to provide services ¥ Need education for families ¥ Need education for legislators Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Leadership Vicksburg Leadership Transportation ¥ Need more transportation in this rural state ¥ Lack of transportation causes isolation and sets people up for abuse Safety ¥ Need safe place to stay when abuse has been identified Resources ¥ Need community referral resources Education ¥ Need education in all areas These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Interview Question: Has your staff been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Leadership Vicksburg Leadership Disability Training ¥ Have ongoing training for staff ¥ Have formal in-service training twice per month ¥ Offer training for others on disabilities ¥ Staff turnover makes ongoing training These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Page | 55 necessary ¥ No specific training on domestic violence or sexual assault Interview Question: How does change happen in your organization? Jackson Leadership Vicksburg Leadership Process ¥ Everyone has a voice but not a vote ¥ Management team reviews and considers change, drafts proposal which then goes to Board of Directors for approval ¥ Board of Directors listens to the public and change focus to match public input ¥ Change happens either too slow or too fast ¥ Change is ever evolving These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Interview Question: How are budget decisions made in your organization? Jackson Leadership Vicksburg Leadership Budget Decisions ¥ Decisions are made by the State Legislature and the Governor ¥ Finance committee within state organization then the budget goes to head of the state organization for approval These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Leadership Vicksburg Leadership Collaboration ¥ Need a plan for collaboration ¥ Need public awareness of disability-related issues ¥ Networking among collaborating organizations ¥ Need good communications among These interviews of leaders represent joint Jackson/Vicksburg leadership responses. Each of the leaders represents branches of both city organizations. Page | 56 collaborating organizations Interviews with Self-Advocates Interview Question: How do you find out things that are going on in your community? Jackson Self-Advocates Vicksburg Self-Advocates Information Sources ¥ Local newspapers ¥ Word of mouth ¥ Internet ¥ Public community meetings ¥ Television No Vicksburg Self-Advocates requested individual interviews. Interview Question: How do you seek services in your community? Jackson Self-Advocates Vicksburg Self-Advocates Various Methods ¥ Circle of friends ¥ Telephone ¥ Personal relationship with care providers ¥ Provider referrals No Vicksburg Self-Advocates requested individual interviews. Interview Question: What services in your community provide you with the best assistance? Jackson Self-Advocates Vicksburg Self-Advocates Service Providers ¥ Medical organizations ¥ Disability organizations ¥ Education organizations No Vicksburg Self-Advocates requested individual interviews. Interview Question: What is the best way to get information to women with disabilities about services available in your community? Jackson Self-Advocates Vicksburg Self-Advocates Various Methods ¥ Medical personnel ¥ US mail No Vicksburg Self-Advocates requested individual interviews. Page | 57 ¥ Churches ¥ Newspaper ¥ Announcements at trainings and meetings ¥ Go door to door ¥ Telephone ¥ Printed materials ¥ Grocery stores Interview Question: What advice would you give a person who is serving people with disabilities about how to better serve them? Jackson Self-Advocates Vicksburg Self-Advocates Sensitivity ¥ To all issues that might impact the person like transportation ¥ To personÕs limitations ¥ To realities of a personÕs lifeÑmany are harsh realities ¥ Find out what people with disabilities have learned by having a disability Understanding ¥ Hard to get people to understand the experience of having a disability ¥ Understanding comes from listening No Vicksburg Self-Advocates requested individual interviews. Interview Question: What qualities would you look for when seeking services from a service provider or advocate? Jackson Self-Advocates Vicksburg Self-Advocates Willingness ¥ To understand ¥ To help ¥ To explain things ¥ To listen ¥ To communicate ¥ To not be judgmental Caring ¥ To care about the issues at hand ¥ To care about the person ¥ To show empathy No Vicksburg Self-Advocates requested individual interviews. Page | 58 Interview Question: Is there anything else you would like to share with us? Jackson Self-Advocates Vicksburg Self-Advocates No responses No Vicksburg Self-Advocates requested individual interviews. ______________________________________________________________________________ Interviews with Health Care Direct Service Providers Interview Question: What was your comfort level in providing services to a person with a disability? Jackson Direct Service Providers Vicksburg Direct Service Providers Comfort Level ¥ Ranged from not very comfortable to very comfortable ¥ Depends on severity of disabilityÑthe more severe the more uncomfortable ¥ Very comfortable even when there is a severe disability ¥ Have sometimes felt very much afraid of people with post traumatic stress disorder who became violent ¥ More comfortable when patient has a physical disability rather than a cognitive or mental health disability ¥ If uncomfortable is usually caused by family members, not person with disability Comfort Level ¥ Sometimes feel little uncomfortable ¥ Feel uncomfortable when person has a mental illness ¥ Very comfortable ¥ If the situation is uncomfortable itÕs usually the family, not the patient with the disability, who causes the discomfort Interview Question: What other community organizations, collaborations or partners have you found helpful in providing services to individuals with disabilities? Not helpful? Jackson Direct Service Providers Vicksburg Direct Service Providers Helpful Community Organizations ¥ Community health departments ¥ Churches and other faith-based organizations ¥ Social Services ¥ Medical clinics in the medical center Helpful community organizations ¥ Family Development center ¥ WIC ¥ Organization that offers transportation ¥ Domestic violence shelter Page | 59 ¥ Paralyzed Veterans of America ¥ Salvation Army ¥ Mental health organizations ¥ An organization that provides food for those who need it ¥ Rehabilitation centers ¥ Domestic violence shelters ¥ College services for sexual assault and domestic violence victims ¥ UNACAREÑUMMC School of Nursing Nurse Practitioner run community clinic Organizations that present challenges ¥ When trying to help people get on Medicaid/Medicare ¥ Pharmaceutical organizations when trying to get assistance for people to get their medications ¥ Organizations that citizens work to fund and then when you ask for assistance for someone they donÕt come through ¥ Insurance companies Interview Question: What are the strengths of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Staff ¥ Sexual Assault Nurse Examiners (SANEs) in Emergency Department ¥ UNACAREÑUMMC School of Nursing Nurse Practitioner run community clinic ¥ Employee Health Clinic ¥ Academic Learning Center Staff ¥ Social Worker staff ¥ SANE program Accessibility ¥ Are wheelchair friendly Medical care for abuse ¥ Provide excellent medical care for people with disabilities Referrals ¥ Staff make referrals to local organizations Page | 60 Interview Question: What are the gaps in services of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Lack of 24/7 Services ¥ Many disability-related services, medical services and other community-based services are not available after hours or on the weekend ¥ Have to remain diligent in tracking down accessibly services ¥ Not enough mental health services in the stateÑespecially for children and adolescents Communication ¥ With other organizations that provide services to people with disabilities ¥ Inability to get information about patient follow-up after patient is discharged from hospital setting Knowledge ¥ Lack of knowledge about disabilities, domestic violence, sexual assault and legal issues ¥ Information needs to be provided to schools for personnel and students ¥ Still have people who believe the myths related to domestic violence and sexual assaultÑneed to change the publicÕs perception of victims of domestic violence and sexual assault, especially if they have a disability Transportation ¥ Not enough transportation for patients to go for follow-up care after discharge Funding ¥ Not enough money to offer all of the services need to offer ¥ People donÕt have money or insurance to pay for follow-up services after discharge Systems Housing ¥ May not have rooms available in domestic violence shelters or homeless shelters when patient is ready for discharge Safety ¥ Ability to keep people safe in the hospital setting Knowledge ¥ Lack of knowledge about disabilities, domestic violence, sexual assault and legal issues ¥ Awareness and knowledge of public about abuse of people with disabilities and resources available Page | 61 ¥ Problems getting people through red tape to get services Responding after the fact ¥ Need to be more pro-active ¥ Need to work on prevention of violence Research ¥ Lack of research on domestic violence, sexual assault and their relationship to various disabilities Disconnect between what a patient needs and what insurance will pay for ¥ Insurance organizations have too much power to determine appropriate medical care for patients Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Direct Service Providers Vicksburg Direct Service Providers Training and Education ¥ Need cross training opportunities in disabilities, domestic violence and sexual assault for health care professionals and first responders like fire department, EMS, etc. Public awareness of the issues and resources available ¥ Need more awareness by people with disabilities ¥ Need more awareness by people without disabilities ¥ Need more awareness by people who provide public services Staff ¥ More social workers available in hospital setting to assist with patient needs and referrals ¥ More access to social workers to help patients after discharge Referral information ¥ Need to know where to refer patients to after they are discharged from the hospital Page | 62 Interpreters ¥ Easy access to language and sign language interpreters Access to physical resources ¥ Need easy access to physical resources such as wheelchairs, walkers, hearing aids, etc. 24/7 Services ¥ Need disability-related services, medical services and other community-based services to be available after hours and on the weekend Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Transportation ¥ Need accessible transportation Training and Education ¥ Need cross training opportunities in disabilities, domestic violence and sexual assault Communication ¥ All organizations need to communicate with each other ¥ Feedback on what happens to the patient after theyÕve left the hospital setting ¥ Feedback on attainment of follow-up services ¥ Make everyone aware of times organizations are open ¥ Need language and sign language interpreters available 24/7 Perception of victims ¥ Stigma attached to having a disability and being a victim of a crime Child care ¥ Some parents with disabilities donÕt have Communication ¥ All organizations need to communicate with each other ¥ Feedback on what happens to the patient after theyÕve left the hospital setting ¥ Feedback on attainment of follow-up services ¥ Make everyone aware of times organizations are open ¥ More timely responses for follow-up organizations Public awareness of the issues ¥ Need more awareness by people with disabilities ¥ Need more awareness by people without disabilities ¥ Need more awareness by people who provide public services Page | 63 access to child care or the funds to obtain child care so they can attend appointments for services Nutrition counseling ¥ Lack of nutrition counseling for patients Personal care providers ¥ Not enough trained personal care providers ¥ Not enough funding to pay for personal care providers Accessibility ¥ Some hospitals still are not completely accessibleÑno ramps, no automatic doors, donÕt have right kinds of equipment like scales for someone who canÕt stand Patients unable to operationalize their health care, diet, exercise ¥ DonÕt live in safe place to walk ¥ Are too obese to exercise or itÕs not physically possible to exercise ¥ DonÕt have funds for medical visits, healthy food, membership to health club, medications, etc. ¥ Medical provider has to send them to other organizations for follow-up tests and transportation becomes an issue ¥ Motivation level of many patients is low ¥ Decreased literacy and decreased health care literacy is a problem with many Mississippians Interview Question: Have you been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Direct Service Providers Vicksburg Direct Service Providers Disability Training ¥ Have had small amount of training on disabilities ¥ Have had much training through Federal role and training offered for disaster preparedness Disability Training ¥ Have not had training on disabilities Domestic Violence Training ¥ Have not had training Page | 64 Domestic Violence Training ¥ Have had small amount of training¥ Sexual Assault Training ¥ Have had small amount of training ¥ SANEs have had much more training than the non-SANE¥ Cross training in disabilities, domestic violence and sexual assault ¥ No one in focus group had cross training on interactions of disabilities, domestic violence and sexual assault Sexual Assault Training ¥ Have had SANE training Cross training in disabilities, domestic violence and sexual assault ¥ Have not had cross training on interactions of disabilities, domestic violence and sexual assault Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Collaboration ¥ All organizations serving people with disabilities and victims of abuse would collaborate to provide appropriate and accessible services ¥ Would have consistent networking between partners ¥ Would have ongoing cross training for staff ¥ Would have good communications in place ¥ Would have easy access to member services ¥ All team members would be invited to Sexual Assault Response Team meetings and/or Emergency Respond Team meetings ¥ Have a trauma checklist or protocol for those with disabilities who experience abuse ¥ Need policies related to accessible services for people with disabilities ¥ Create a follow-up system to make sure people receive appropriate and accessible follow-up after they leave the medical organization ¥ Assure continuity of services ¥ Have the collaborating organizations a Òone stop shopÓ where all organizations are under a Collaboration ¥ All organizations serving people with disabilities and victims of abuse would collaborate to provide appropriate and accessible services ¥ Would have consistent networking between partners ¥ Would have ongoing cross training for staff ¥ Would have good communications in place ¥ Have a trauma checklist or protocol for those with disabilities who experience abuse ¥ Would have team members who would have extensive training on how to work with people with all sorts of disabilities Page | 65 common roof ¥ Collaborative needs to maintain confidentiality Emergency Response Team ¥ Need emergency response team that has disability experts on it Interview Question: Is there anything else you would like for us to know? Jackson Direct Service Providers Vicksburg Direct Service Providers ¥ Need ongoing care that patients can afford ¥ Need ongoing education for patients ¥ Safety is always of importance when caring for these patients ______________________________________________________________________________ Focus Groups with Domestic Violence and Rape Crisis Center Direct Service Providers Interview Question: What was your comfort level in providing services to a person with a disability? Jackson Direct Service Providers Vicksburg Direct Service Providers Comfort Level ¥ Never 100% ¥ Comfortable ¥ Acceptable depending on what needs are Comfort Level ¥ Depends on level of disability ¥ Feels comfortableÑdoes not discriminate ¥ Fairly comfortable ¥ Will refer clients if canÕt provide services ¥ Treat people with disabilities like everyone else Interview Question: What other community organizations, collaborations or partners have you found helpful in providing services to individuals with disabilities? Not helpful? Jackson Direct Service Providers Vicksburg Direct Service Providers Page | 66 Helpful Community Organizations: ¥ Current community partners ¥ Volunteers ¥ Churches ¥ Hospitals ¥ Non-profits ¥ Mental Health Center ¥ Law Enforcement organizations ¥ Organization that teaches people hands-on skills ¥ Schools ¥ Organization that provides eye glasses ¥ Organization that builds ramps ¥ Organization to assist with finding housing ¥ Strong United Way Helpful Community Organizations: ¥ Local organization that helps with eye glasses ¥ One organization helps people with disabilities find jobs ¥ Organization that provides some medical supplies ¥ One organization will install rails if asked ¥ Disability-focused organizations ¥ Community mental health organizations ¥ Jackson medical facilities ¥ Community health organizations ¥ Some apartment complexes will help when asked Non-helpful community organizations: ¥ Organizations that close after normal working hours or on weekends ¥ Organizations that wonÕt provide assistance unless the person has money or insurance Interview Question: What are the strengths of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Staff ¥ Best strength of shelter ¥ Trained in CPR and First Aid ¥ Have learned to adjust to people with disabilities ¥ It is natural for staff to feel helpful ¥ Are compassionate Organization ¥ Is wheelchair accessible Community ¥ Has bus service Civic Support ¥ Strong community support for the shelter Accessibility ¥ Community becoming more accessible with building ramps, accessible parking, city buses Staff ¥ Are compassionate, patient, willing to assist those with disabilities ¥ Schedules are flexible ¥ Have strong networking with other community organizations ¥ Long history of working with persons who have been abused ¥ Have creative ideas for solving problems ¥ Adjust well to challenges Page | 67 Interview Question: What are the gaps in services of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Lack of 24/7 Services ¥ Many disability-related services, medical services and other community-based services are not available after hours or on the weekend Activities for people with disabilities ¥ DonÕt have enough activities in the community ¥ DonÕt have enough activities in the shelter Funding ¥ Never enough money to offer all of the services you want to offer Housing ¥ Not enough affordable housing ¥ Large population of homeless because of housing situation in community ¥ Not enough space and services at homeless shelters Housing ¥ Not enough affordable housing ¥ Large population of homeless because of housing situation in community ¥ Not enough space and services at homeless shelters ¥ DonÕt provide direct services, including shelter, to males ages 13 and older Accessibility ¥ Need accessible transportation ¥ Not enough activities available for people with disabilities Manpower ¥ Need more staff at shelter ¥ Would need to bring in medical personnel if person required medical care while in shelter Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Direct Service Providers Vicksburg Direct Service Providers Access to more ¥ Staff ¥ Money ¥ Programs for clients ¥ Medical care Emergency Response Team ¥ Need emergency response team that has disability experts on it Information Information ¥ Training and education ¥ Information on services available ¥ Feedback on what happens after a person is referred to another organization Funding ¥ Need funding to provide adequate and appropriate services Staff Page | 68 ¥ Training and education ¥ Information on services available ¥ Need consistent staff ¥ Need consistent, flexible volunteers Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Transportation ¥ Need accessible transportation especially if coming from a rural area for services in Jackson ¥ People with disabilities have difficulty getting on and off buses in Jackson Information ¥ Training and education ¥ Training on communicating with individuals with hearing impairment ¥ Information on services available¥ Funding ¥ Need funding to provide adequate and appropriate services Accessibility ¥ Need equipped facilities whether have someone receiving services who has a disability or not ¥ CanÕt have accessible services if person canÕt get to you---need accessible transportation Interview Question: Have you been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Direct Service Providers Vicksburg Direct Service Providers Disability Training ¥ Have not had trainingÑwant it for all staff ¥ Especially want training on working with people with sight and hearing impairments Domestic Violence Training ¥ Have had ongoing training Sexual Assault Training ¥ Have had ongoing training Disability Training ¥ Have not had trainingÑwant it for all staff Domestic Violence Training ¥ Have had ongoing training Sexual Assault Training ¥ Have had ongoing training Page | 69 Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Collaboration ¥ All organizations serving people with disabilities and victims of abuse would collaborate to provide appropriate and accessible services ¥ Would have consistent networking between partners ¥ Would have ongoing cross training for staff ¥ Would have good communications in place ¥ Would have easy access to member services ¥ A collaboration would have a transportation plan in place for persons accessing the system Collaboration ¥ All organizations serving people with disabilities and victims of abuse would collaborate to provide appropriate and accessible services ¥ A collaboration would have a transportation plan in place for persons accessing the system ¥ Would have ongoing cross training for staff ¥ Would have consistent networking between partners ¥ Would have regular meetingsÑhave a dialogue, not play the blame game ¥ Would have activities in place for people with disabilities ¥ All organizations would be in one location so anyone with or without a disability would only have to go to one location to receive all services ¥ Adequate funding would be needed to have a collaborative effort ¥ If canÕt be in one location then develop a comprehensive directory of services and distribute to all organizations serving people with disabilities Interview Question: Is there anything else you would like for us to know? Jackson Direct Service Providers Vicksburg Direct Service Providers Leaving shelter concerns ¥ Problems finding housing ¥ Need something to doÑneed to be productive to feel like they contributeÉvolunteer, have job, etc. ______________________________________________________________________________ Focus Groups with Health Care Direct Service Providers Page | 70 Interview Question: What was your comfort level in providing services to a person with a disability? Jackson Direct Service Providers Vicksburg Direct Service Providers Comfort Level ¥ Ranged from not very comfortable to comfortable ¥ Depends on severity of disability There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Interview Question: What other community organizations, collaborations or partners have you found helpful in providing services to individuals with disabilities? Not helpful? Jackson Direct Service Providers Vicksburg Direct Service Providers Helpful Community Organizations: ¥ Rehabilitation centers ¥ Social Workers ¥ Domestic violence shelters ¥ College services for sexual assault and domestic violence victims There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Interview Question: What are the strengths of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Staff ¥ Sexual Assault Nurse Examiners (SANEs) in Emergency Department ¥ Flexible physicians who work with SANEs There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Interview Question: What are the gaps in services of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Lack of 24/7 Services ¥ Many disability-related services, medical services and other community-based services are not available after hours or on the weekend There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Page | 71 Communication ¥ With other organizations that provide services to people with disabilities Knowledge ¥ Lack of knowledge about disabilities, domestic violence, sexual assault and legal issues Transportation ¥ Not enough transportation for patients to go for follow-up care after discharge Funding ¥ Not enough money to offer all of the services need to offer ¥ People donÕt have money or insurance to pay for follow-up services after discharge Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Direct Service Providers Vicksburg Direct Service Providers Housing ¥ Not enough affordable housing ¥ Large population of homeless because of housing situation in community ¥ Not enough space and services at homeless shelters Funding ¥ Need funding to help the homeless and others get the medication they need 24/7 Services ¥ Need disability-related services, medical services and other community-based services to be available after hours and on the weekend Advocates ¥ Need domestic violence and rape crisis advocates 24 hours per day There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Page | 72 Emergency Response Team ¥ Need emergency response team that has disability experts on it ¥ Need nursing crisis hot-line to call for assistance Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Transportation ¥ Need accessible transportation Training and Education ¥ Need cross training opportunities in disabilities, domestic violence and sexual assault Communication ¥ All organizations need to communicate with each other ¥ Feedback on what happens to the patient after theyÕve left the hospital setting ¥ Feedback on attainment of follow-up services ¥ Make everyone aware of times organizations are open There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Interview Question: Have you been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Direct Service Providers Vicksburg Direct Service Providers Disability Training ¥ Have had small amount of training on disabilities¥ Domestic Violence Training ¥ Have had small amount of training Sexual Assault Training ¥ Have had small amount of training There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Page | 73 ¥ SANEs have had much more training than the non-SANE Cross training in disabilities, domestic violence and sexual assault ¥ No one in focus group had cross training on interactions of disabilities, domestic violence and sexual assault Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Collaboration ¥ All organizations serving people with disabilities and victims of abuse would collaborate to provide appropriate and accessible services ¥ Would have consistent networking between partners ¥ Would have ongoing cross training for staff ¥ Would have good communications in place ¥ Would have easy access to member services ¥ All team members would be invited to Sexual Assault Response Team meetings and/or Emergency Respond Team meetings ¥ Have a trauma checklist or protocol for those with disabilities who experience abuse ¥ Create a follow-up system to make sure people receive appropriate and accessible follow-up after they leave the medical organization Emergency Response Team ¥ Need emergency response team that has disability experts on it There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. Interview Question: Is there anything else you would like for us to know? Page | 74 Jackson Direct Service Providers Vicksburg Direct Service Providers No responses There were no focus groups done for Vicksburg health care direct service providers. All health care providers were interviewed individually. ______________________________________________________________________________ ______________________________________________________________________________ Focus Groups with Disability Direct Service Providers Interview Question: What was your comfort level in providing services to a person with a disability? Jackson Direct Service Providers Vicksburg Direct Service Providers Comfort Level ¥ Consensus: Very comfortable to extremely comfortable ¥ Comfortable Comfort Level ¥ High ¥ Personal reasons for working with people with disabilitiesÑhelps with comfort level ¥ Not comfortable if person with disability is obnoxious or has mental health issue Interview Question: What other community organizations, collaborations or partners have you found helpful in providing services to individuals with disabilities? Not helpful? Jackson Direct Service Providers Vicksburg Direct Service Providers Helpful community organizations: ¥ Local non-profit organizations ¥ Other local disability organizations ¥ Rehabilitation services ¥ Medical organizations ¥ Crisis centers Non-helpful community organizations: ¥ Public transportation ¥ HousingÑnot enough accessible housing units ¥ Law-related organizations Helpful community organizations: ¥ Local organization that helps with utilities, rent/mortgage ¥ Meals on Wheels ¥ Organization that provides some transportation ¥ One organization teaches life skills Non-helpful community organizations: ¥ Transportation in general, especially if the person canÕt get to a bus-stop Page | 75 Interview Question: What are the strengths of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Staff ¥ Most staff have disabilities so understand the lived experience ¥ Most know community resources that are available ¥ Recognize that males are also abuse victims Accessibility ¥ City is working toward adding ramps to sidewalks Staff ¥ Are compassionate Haven House (domestic violence family shelter) ¥ Staff will find shelter for someone with a disability even if the shelter does not have the capacity to house the person ¥ Staff will find shelter for children with disabilities even if the shelter does not have the capacity to house the child Interview Question: What are the gaps in services of your organization and community in providing services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Services ¥ Need accessible shelters for those who are abused ¥ Difficulty finding appropriate services in general Staff ¥ Need more cross training among organization staff ¥ Have so much independence may not always empathize with persons experiencing abuse Accessibility ¥ Need accessible transportation ¥ Need all city sidewalks to be accessible ¥ Need public buildings to be accessible: wide doors, automatic doors, ramps, etc. ¥ Not enough monitoring of valid parking in accessible parking spaces in city Interview Question: What do you need to do your job serving individuals with disabilities more efficiently? Jackson Direct Service Providers Vicksburg Direct Service Providers Page | 76 Resources ¥ Staff need knowledge about community referral resources available to people with disabilities ¥ Need updated and detailed referral information Education ¥ Need more trained individuals to provide services ¥ Need continuing education in these areas for service providers ¥ Need education for families, schools, workplace, nursing facilities, etc. ¥ Need training on domestic violence and sexual assault in general Need training on how to assess for domestic violence and sexual assault Information ¥ Training and education ¥ Information on services available ¥ Feedback on what happens after a person is referred to another organization Funding ¥ Need funding to provide adequate and appropriate services Interview Question: What do you see as barriers to providing effective service to victims of domestic violence and sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Transportation ¥ Need more accessible transportation in this rural state Safety ¥ Need safe place to stay when abuse has been identified Resources ¥ Need community referral resources ¥ Need to know what resources are available Education ¥ Need education and training in all areas of disabilities, domestic violence and sexual assault Information ¥ Training and education ¥ Information on services available ¥ Feedback on what happens after a person is referred to another organization Funding ¥ Need funding to provide adequate and appropriate services Accessibility ¥ Need accessible transportation ¥ Need all city sidewalks to be accessible ¥ Need public buildings to be accessible: wide doors, automatic doors, ramps, etc. ¥ Not enough monitoring of valid parking in accessible parking spaces in city Stigma ¥ People run in to being prejudged to some Page | 77 degree ¥ People judging those with hidden disabilities as just using the system Interview Question: Have you been trained on all types of disabilities and how to respond to persons with disabilities who seek services in your organization? Jackson Direct Service Providers Vicksburg Direct Service Providers Disability Training ¥ Have not had trainingÑwant it for all staff ¥ Feel other staff are resources about disabilities because they all have different types of disabilities Domestic Violence Training ¥ Have not had trainingÑwant it for all staff Sexual Assault Training ¥ Have not had trainingÑwant it for all staff Disability Training ¥ Have not had trainingÑwant it for all staff Domestic Violence Training ¥ Have not had trainingÑwant it for all staff Sexual Assault Training ¥ Have not had trainingÑwant it for all staff Interview Question: How can disability/sexual assault/domestic violence and health care organizations work better together to provide services to women with disabilities who are victims of domestic violence or sexual assault? Jackson Direct Service Providers Vicksburg Direct Service Providers Collaboration ¥ Need to establish a system to bring all organizations working with people with disabilities and victims of abuse together ¥ Collaborative needs to work toward a solution of all problems together Accountability ¥ Needs to be a system in place for accountability in responding to an abuse victim Accessibility ¥ Need to collaborate with disability organizations to help make shelters accessible ¥ Need to make city hospital more accessible Collaboration ¥ All organizations serving people with disabilities and victims of abuse would collaborate to provide appropriate and accessible services ¥ All organizations would be in one location so anyone with or without a disability would only have to go to one location to receive all services ¥ Adequate funding would be needed to have a collaborative effort ¥ If canÕt be in one location then develop a comprehensive directory of services and distribute to all organizations serving people with disabilities Page | 78 Education and Training ¥ Need to have partners in collaboration cross train on disability, domestic violence and sexual assault issues including identification and assessment of abuse Communication ¥ Need system of follow-up to know if person is getting appropriate services ¥ Need help understanding the legal system Interview Question: Is there anything else you would like for us to know? Jackson Direct Service Providers Vicksburg Direct Service Providers No response No response Focus Groups with Self-Advocates Interview Question: How do you find out things that are going on in your community? Jackson Self-Advocates Vicksburg Self-Advocates Information Sources ¥ Local newspapers ¥ Word of mouth ¥ Internet: email ¥ Public community meetings ¥ Television ¥ Referrals ¥ Telephone calls Vicksburg self-advocates are members of same organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Interview Question: How do you seek services in your community? Jackson Self-Advocates Vicksburg Self-Advocates Various Methods ¥ Circle of friends ¥ Telephone ¥ Personal relationship with care providers ¥ Provider referrals Vicksburg self-advocates are members of same organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Page | 79 ¥ Conferences ¥ Medical suppliers ¥ Physicians ¥ Vocational Rehabilitation Department helps Interview Question: What services in your community provide you with the best assistance? Jackson Self-Advocates Vicksburg Self-Advocates Service Providers ¥ Medical organizations ¥ Disability organizations ¥ Education organizations ¥ Rehabilitation services ¥ Non-profits (charities) ¥ Crisis centers Vicksburg self-advocates are members of same organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Interview Question: What is the best way to get information to women with disabilities about services available in your community? Jackson Self-Advocates Vicksburg Self-Advocates Various Methods ¥ Medical personnel ¥ US mail ¥ Churches ¥ Newspaper ¥ Announcements at trainings and meetings ¥ Go door to door ¥ Telephone ¥ Printed materials ¥ Grocery stores ¥ Flyers ¥ Schools ¥ Community gatherings ¥ Health fairs ¥ Drug stores ¥ Wal-Mart ¥ Library ¥ Radio ¥ Where we work ¥ Put flyers/brochures on cars Vicksburg self-advocates are members of same organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Page | 80 Interview Question: What advice would you give a person who is serving people with disabilities about how to better serve them? Jackson Self-Advocates Vicksburg Self-Advocates Sensitivity ¥ Acknowledges the person ¥ Acknowledges the disability ¥ To personÕs limitations Staff ¥ Be accessible to the person ¥ If service provider isnÕt the right person to help, find the right person ¥ Follow-through with what is promised ¥ If canÕt follow through with promises, explain why not Honesty ¥ Be honest no matter what Communication ¥ DonÕt give inconsistent answers ¥ DonÕt double-talk ¥ Clear up confusion Respect ¥ Treat the person with respect no matter what Understanding ¥ Get trained on how to better understand people with disabilities ¥ Understanding comes from listening to what is said ¥ Get to know the person with the disability ¥ DonÕt assume anything Vicksburg self-advocates are members of same organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Interview Question: What qualities would you look for when seeking services from a service provider or advocate? Jackson Self-Advocates Vicksburg Self-Advocates Knowledge about Vicksburg self-advocates are members of same Page | 81 ¥ Disabilities ¥ Resources ¥ Referrals Want service provider to ¥ Be compassionate ¥ Be caring ¥ Be kind ¥ Say Òthank youÓ ¥ Help me ¥ Talk to me ¥ Not be afraid I might fail ¥ Assume competence ¥ Know that the person knows what they are talking aboutÑitÕs their disability ¥ Know that people will not return for service if they do not receive accommodations when needed DonÕt want these qualities ¥ Service provider being too personal ¥ Service provider telling them personal information about someone else ¥ Service provider patronizing themÑpeople with disabilities are not children organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Interview Question: Is there anything else you would like to share with us? Jackson Self-Advocates Vicksburg Self-Advocates General comments ¥ Not enough community services ¥ Cost of medications too high ¥ Want more choices for services ¥ Have to travel too far to received needed services ¥ Not enough transportation ¥ Need more service providers in the state ¥ Hard getting a job ¥ Need help with bathroom and home modifications ¥ Hard for people with vision impairments to get public transportation Vicksburg self-advocates are members of same organizations as Jackson self-advocates and meet at the same time. Vicksburg selfadvocate responses are included with those of Jackson self-advocates. Page | 82